Meaning in life and quality of life: palliative care patients versus the general population.

IF 2 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

BMJ Supportive & Palliative Care Pub Date : 2024-12-19 DOI:10.1136/bmjspcare-2020-002211

Mathieu Bernard, André Berchtold, Florian Strasser, Claudia Gamondi, Gian Domenico Borasio

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Abstract

Background and objectives: Meaning in life (MIL) represent a key topic in palliative care. The aims of this study were to explore (1) the differences in perceived MIL and in the meaning-relevant life areas between a representative sample of the Swiss population and palliative care patients, and (2) to what extent MIL can be considered as a significant predictor of quality of life (QOL).

Methods: A cross-sectional study was conducted separately for the patients (face-to-face interviews) and the general population (telephone survey). MIL was measured with the Schedule for Meaning in Life Evaluation (SMILE) and QOL with a single-item visual analogue scale (0-10). Sociodemographic variables were controlled for in the analyses.

Results: 206 patients and 1015 participants from the Swiss population completed the protocol. Results indicated high MIL scores in both populations even if the difference was significant (patients 81.9 vs general population 87, p<0.001). Patients were more likely to cite 'family' (OR=1.78), 'social relations' (OR=1.9), 'spirituality and religion' (OR=3.93), 'social commitment' (OR=1.94) and 'growth' (OR=2.07), and less likely to cite 'finances' (OR=0.15) and 'health' (OR=0.21) as MIL-relevant areas. The SMILE scores and MIL areas explained 21.8% of the QOL variance for the patients and 15.1% for the representative sample.

Conclusions: Our data emphasise the importance of MIL as a contributor to QOL in both populations. It highlights the importance of the life areas contributing to MIL, especially social interactions for both populations, and spirituality and areas related to growth in palliative care patients.

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生命的意义与生活质量：姑息关怀患者与普通人群的对比。

背景和目的：生命意义（MIL）是姑息关怀的一个关键主题。本研究的目的是探讨：（1）瑞士人口中具有代表性的样本与姑息关怀患者在感知生命意义和生命意义相关领域方面的差异；（2）生命意义在多大程度上可被视为生活质量（QOL）的重要预测因素：方法：分别对病人（面对面访谈）和普通人群（电话调查）进行了横断面研究。MIL 采用生活意义评估表（SMILE）进行测量，QOL 采用单项视觉模拟量表（0-10）进行测量。结果：206 名患者和来自瑞士的 1015 名参与者完成了方案。结果显示，两种人群的 MIL 得分都很高（患者为 81.9 分，普通人群为 87 分，p），即使差异显著：我们的数据强调了 MIL 在两种人群中对提高 QOL 的重要性。它强调了生活领域对 MIL 的重要性，尤其是两种人群的社会交往，以及姑息治疗患者的精神生活和与成长相关的领域。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMJ Supportive & Palliative Care Medicine-Medicine (miscellaneous)

CiteScore

4.60

自引率

7.40%

发文量

170

期刊介绍： Published quarterly in print and continuously online, BMJ Supportive & Palliative Care aims to connect many disciplines and specialties throughout the world by providing high quality, clinically relevant research, reviews, comment, information and news of international importance. We hold an inclusive view of supportive and palliative care research and we are able to call on expertise to critique the whole range of methodologies within the subject, including those working in transitional research, clinical trials, epidemiology, behavioural sciences, ethics and health service research. Articles with relevance to clinical practice and clinical service development will be considered for publication. In an international context, many different categories of clinician and healthcare workers do clinical work associated with palliative medicine, specialist or generalist palliative care, supportive care, psychosocial-oncology and end of life care. We wish to engage many specialties, not only those traditionally associated with supportive and palliative care. We hope to extend the readership to doctors, nurses, other healthcare workers and researchers in medical and surgical specialties, including but not limited to cardiology, gastroenterology, geriatrics, neurology, oncology, paediatrics, primary care, psychiatry, psychology, renal medicine, respiratory medicine.