Jodi Millicent O'Donnell, George Alexander Jelinek, Kathleen Mary Gray, Alysha De Livera, Chelsea Rae Brown, Sandra Leanne Neate, Emily Louise O'Kearney, Keryn Louise Taylor, William Bevens, Tracey Joy Weiland
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引用次数: 5
Abstract
We aimed to describe website traffic and qualitatively analyze an e-health community discussion forum. Participants in this study were people affected by multiple sclerosis visiting the Overcoming Multiple Sclerosis (OMS) website. This mixed methods study combined descriptive analysis of website traffic over 7 years and 1 month, and qualitative analysis of 1 week of posts in the meditation topic, coded into theme groups using qualitative thematic analysis. There were 166 meditation topics posted with 21,530 initial views of primary post and 785 sub-post responses. Meditation posts and sub-posts received 368,713 replies. Number of views increased from 4,684 in 2011 to over 80,000 in 2017, a considerably greater rate of increase than overall traffic. Qualitative analysis of posts on the meditation forum identified themes of barriers and enablers to utilization of meditation resources. Enablement themes dominated, observed across six of the seven theme groups with various forms of positive social and emotional support to learn and practice meditation. One theme, negative emotion, was identified as a barrier. The OMS peer-to-peer patient online discussion forum serves important functions in encouraging, educating and enabling its growing online community. Our analysis may help improve and innovate online support for lifestyle management in many chronic diseases.
期刊介绍：
Informatics for Health & Social Care promotes evidence-based informatics as applied to the domain of health and social care. It showcases informatics research and practice within the many and diverse contexts of care; it takes personal information, both its direct and indirect use, as its central focus.
The scope of the Journal is broad, encompassing both the properties of care information and the life-cycle of associated information systems.
Consideration of the properties of care information will necessarily include the data itself, its representation, structure, and associated processes, as well as the context of its use, highlighting the related communication, computational, cognitive, social and ethical aspects.
Consideration of the life-cycle of care information systems includes full range from requirements, specifications, theoretical models and conceptual design through to sustainable implementations, and the valuation of impacts. Empirical evidence experiences related to implementation are particularly welcome.
Informatics in Health & Social Care seeks to consolidate and add to the core knowledge within the disciplines of Health and Social Care Informatics. The Journal therefore welcomes scientific papers, case studies and literature reviews. Examples of novel approaches are particularly welcome. Articles might, for example, show how care data is collected and transformed into useful and usable information, how informatics research is translated into practice, how specific results can be generalised, or perhaps provide case studies that facilitate learning from experience.
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