[Multidisciplinary Management and Neurorehabilitation of Patients with Amyotrophic Lateral Sclerosis].

Q4 Medicine
Acta Medica Croatica Pub Date : 2016-04-01
H Budinčević, A Marčinko Budinčević, M Kos, S Vlašić, J Bartolović, S Benko, V Ostojić, S Soldo Butković
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引用次数: 0

Abstract

Patients with amyotrophic lateral sclerosis require comprehensive care with a multidisciplinary approach, which is individually adjusted to each patient. The goals of neurorehabilitation should be adjusted to the stage of disease. In early stages, physical therapy is focused on preserving and optimizing motor and respiratory function. At this stage, family should be involved to partake in desired activities and be informed regarding the natural course of the disease. In late stages, physical therapy is focused on preventing respiratory complications and contractures, and orthotics may also be recommended. The onset of dysarthria should trigger swallowing and pulmonary function testing. Swallowing maneuvers should be tried at the onset of symptoms, later feeding tubes or percutaneous gastrostomy tube is necessary. Noninvasive mechanical ventilation may delay the need of tracheostomy and invasive mechanical ventilation. The key objectives of multidisciplinary teams are to optimize medical care, facilitate communication, and thus to improve the quality of care and quality of life.

肌萎缩性侧索硬化症患者的多学科管理和神经康复
肌萎缩性侧索硬化症患者需要多学科的综合护理,每个患者都需要单独调整。神经康复的目标应根据疾病的阶段进行调整。在早期阶段,物理治疗的重点是保持和优化运动和呼吸功能。在这一阶段,家人应参与所需的活动,并了解疾病的自然病程。在后期,物理治疗的重点是防止呼吸并发症和挛缩,矫形器也可能被推荐。构音障碍的发作应引起吞咽和肺功能检查。在出现症状时应尝试吞咽动作,以后需要使用饲管或经皮胃造口管。无创机械通气可延迟气管切开术和有创机械通气的需要。多学科团队的主要目标是优化医疗护理,促进沟通,从而提高护理质量和生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Acta Medica Croatica
Acta Medica Croatica Medicine-Medicine (all)
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期刊介绍: ACTA MEDICA CROATICA publishes original contributions to medical sciences, that have not been previously published. All manuscripts should be written in English.
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