The Use of patient Reported Outcome Measures for Rheumatoid Arthritis in Japan: A Systematic Literature Review.

Q4 Medicine

Open Rheumatology Journal Pub Date : 2017-04-28 eCollection Date: 2017-01-01 DOI:10.2174/1874312901711010043

Ann Chuo Tang, Hyunchung Kim, Bruce Crawford, Taeko Ishii, Tamas Treuer

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引用次数: 6

Abstract

Background: Patient-reported outcomes (PRO) obtained through routine medical care may identify patients' day-to-day burden and help tackle the disease from the patients' perspective. However, there is a paucity of information regarding the availability of PRO data and PRO tools for rheumatoid arthritis (RA) in Japan.

Objective: We reviewed the literature on PRO data availability and to identify PRO measures implemented in Japan for RA patients.

Method: We conducted a systematic literature review using ICHUSHI and the PubMed databases on PRO measures for RA published from January 2011 to August 2015 in Japan.

Results: After removing duplicates, 2423 manuscripts were found. From these, 100 manuscripts were included for review and analysis. We found 29 PRO tools that were used to assess various domains of health such as general well-being, pain, functionality, and fatigue. More than 90% of the studies utilized PRO tools for research purpose. Only one study reported PRO tool implementation in the routine medical care.

Conclusion: The importance of PROs is recognized in Japan. PRO tools varied significantly and were mostly used for research purposes, while reports on the use of PRO measures in routine medical care were limited. Despite the awareness of PROs in the research community, unmet needs remain among RA patients in Japan. Further work is needed to investigate ways in which PROs can better reflect these unmet needs and be utilized in routine medical care.

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日本类风湿关节炎患者报告结果测量方法的使用:系统文献综述。

背景:通过常规医疗护理获得的患者报告预后(PRO)可以确定患者的日常负担，并从患者的角度帮助解决疾病。然而，在日本，关于类风湿关节炎(RA)的PRO数据和PRO工具的可用性信息缺乏。目的:我们回顾了有关PRO数据可用性的文献，并确定日本对RA患者实施的PRO措施。方法:利用ICHUSHI和PubMed数据库对2011年1月至2015年8月在日本发表的RA PRO测量方法进行系统文献综述。结果:剔除重复后，共发现2423篇。从中选出100份手稿进行审查和分析。我们发现了29种PRO工具，用于评估健康的各个领域，如一般健康、疼痛、功能和疲劳。超过90%的研究使用PRO工具进行研究。只有一项研究报告了PRO工具在常规医疗护理中的应用。结论:PROs在日本的重要性已得到认可。PRO工具差异很大，大多用于研究目的，而关于在常规医疗保健中使用PRO措施的报告有限。尽管研究界意识到了PROs，但日本RA患者的需求仍未得到满足。需要进一步的工作来研究如何更好地反映这些未满足的需求，并在日常医疗保健中加以利用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Open Rheumatology Journal Medicine-Rheumatology

CiteScore

0.80

自引率

0.00%

发文量

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