Constructing populations in biobanking.

IF 3.1 Q1 Arts and Humanities
Life Sciences, Society and Policy Pub Date : 2015-01-01 Epub Date: 2015-07-21 DOI:10.1186/s40504-015-0024-0
Aaro Tupasela, Karoliina Snell, Jose A Cañada
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引用次数: 0

Abstract

This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a broad range of different strategies with regard to engagement. We argue that these different approaches to engagement strategies are contributing to the construction of populations, whereby specific nationalities, communities, societies, patient groups and political systems become imbued or bio-objectified with particular characteristics, such as compliant, distant, positive, commercialized or authoritarian. This bio-objectification process is problematic in relation to policy aspirations ascribed to biobanking engagement since it gives rise to reified notions of different populations.

在生物库中构建种群。
本文提出了这样一个问题:生物银行的实践和标准是否会导致人群的构建,而各种生物银行倡议是否会越来越多地利用这些人群来获得合法性?我们认为,尽管最近的生物银行政策鼓励以各种形式与公众接触以确保合法性,但不同的生物银行对其接触策略的概念却大相径庭。我们认为,生物银行在参与方面采取了多种不同的策略。我们认为,这些不同的参与策略有助于构建人群,使特定的民族、社区、社会、患者群体和政治体系被赋予或生物对象化的特定特征,如顺从、疏远、积极、商业化或专制。这种生物对象化过程与生物银行参与的政策愿望有关,存在问题,因为它产生了不同人群的再定义概念。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Life Sciences, Society and Policy
Life Sciences, Society and Policy Arts and Humanities-Philosophy
自引率
0.00%
发文量
0
审稿时长
18 weeks
期刊介绍: The purpose of Life Sciences, Society and Policy (LSSP) is to analyse social, ethical and legal dimensions of the most dynamic branches of life sciences and technologies, and to discuss ways to foster responsible innovation, sustainable development and user-driven social policies. LSSP provides an academic forum for engaged scholarship at the intersection of life sciences, philosophy, bioethics, science studies and policy research, and covers a broad area of inquiry both in emerging research areas such as genomics, bioinformatics, biophysics, molecular engineering, nanotechnology and synthetic biology, and in more applied fields such as translational medicine, food science, environmental science, climate studies, research on animals, sustainability, science education and others. The goal is to produce insights, tools and recommendations that are relevant not only for academic researchers and teachers, but also for civil society, policy makers and industry, as well as for professionals in education, health care and the media, thus contributing to better research practices, better policies, and a more sustainable global society.
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