Outcomes of a Peer Support Program in Multiple Sclerosis in an Australian Community Cohort: A Prospective Study.

Journal of Neurodegenerative Diseases Pub Date : 2013-01-01 Epub Date: 2013-12-05 DOI:10.1155/2013/429171
Louisa Ng, Bhasker Amatya, Fary Khan
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引用次数: 21

Abstract

Background/Objectives. This pilot study evaluated the impact of a peer support program on improving multiple sclerosis (MS) related psychological functions (depression, anxiety, and stress) and enhancing quality of life. Methodology. Participants (n = 33) were recruited prospectively and received an 8-week group face-to-face peer support program. Assessments were at baseline (T1), 6 weeks after program (T2), and 12 months after program (T3), using validated questionnaires: Depression Anxiety Stress Scale (DASS), McGill Quality of Life (MQOL), and Brief COPE. Results. Participants' mean age was 52; the majority were female (64%) and married (64%). Median time since MS diagnosis was 16 years. At T2, participants reported improved psychological functioning (DASS "depression," "anxiety," and "stress" subscales, z values -2.36, -2.22, and -2.54, moderate effect sizes (r) 0.29, 0.28, and 0.32, resp.) and quality of life (MQOL SIS z score -2.07, r = 0.26) and were less likely to use "self-blame" as a coping mechanism (Brief COPE z score -2.37, r = 0.29). At T3, the positive improvements in stress (DASS stress subscale z score -2.41, r = 0.31) and quality of life were maintained (MQOL SIS, z score -2.30, r = 0.29). There were no adverse effects reported.

Abstract Image

澳大利亚社区队列中多发性硬化症同伴支持项目的结果:一项前瞻性研究。
背景/目标。本初步研究评估同伴支持计划对改善多发性硬化症(MS)相关心理功能(抑郁、焦虑和压力)和提高生活质量的影响。方法。前瞻性招募参与者(n = 33)并接受为期8周的小组面对面同伴支持计划。评估分别在基线(T1)、项目后6周(T2)和项目后12个月(T3)进行,采用有效问卷:抑郁焦虑压力量表(DASS)、麦吉尔生活质量量表(MQOL)和Brief COPE。结果。参与者的平均年龄为52岁;大多数是女性(64%)和已婚(64%)。MS诊断后的中位时间为16年。在T2时,参与者报告心理功能(DASS“抑郁”、“焦虑”和“压力”分量表,z值为-2.36、-2.22和-2.54,中等效应值(r)为0.29、0.28和0.32,resp.)和生活质量(MQOL SIS z值为-2.07,r = 0.26)得到改善,并且较少使用“自责”作为应对机制(Brief COPE z值为-2.37,r = 0.29)。在T3时,应激(DASS应激子量表z分-2.41,r = 0.31)和生活质量(MQOL SIS, z分-2.30,r = 0.29)均保持正向改善。没有不良反应的报道。
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