Validation of the Flemish version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire.

IF 1.1 4区医学 Q2 MEDICINE, GENERAL & INTERNAL

Acta Clinica Belgica Pub Date : 2014-06-01 Epub Date: 2014-04-02 DOI:10.1179/2295333714Y.0000000024

A C Rohenkohl, J De Schepper, J Vanderfaeillie, K Fricke, S Hendrickx, K Lagrou, M Bullinger, J Quitmann

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引用次数: 7

Abstract

Objectives: The Quality of Life in Short Stature Youth (QoLISSY) questionnaire was recently developed in five European countries to assess health-related quality of life in children and adolescents with idiopathic short stature or growth hormone deficiency from child and parent perspectives. In addition to the existing French version, a Flemish version is needed for use of QoLISSY in the Flemish speaking part of Belgium.

Methods: Children (8-18 years) and their parents recruited from two Belgian paediatric endocrinology clinics completed the QoLISSY in a cross-sectional study. Cronbach's Alpha and test-retest reliability was assessed. Validity was examined by correlation with the generic KIDSCREEN questionnaire as well as by group comparisons according to diagnostic and treatment status.

Results: The QoLISSY scales had an acceptable internal consistency with Cronbach's Alpha ranging from 0·80 to 0·94 (child version) and from 0·77 to 0·92 (parent version). Test-retest reliability correlation coefficients ranged from r = 0·75 to 0·89 in the child version and from r = 0·58 to 0·85 in the parent version. Moderate correlations with the generic KIDSCREEN questionnaire suggested construct validity. Differences between child groups according to child age, underlying diagnosis, and degree of height deficit were found. Correlations with the European QoLISSY were significant for all scales.

Discussion: The Flemish QoLISSY instrument is a psychometrically sound, reliable, and valid short stature specific questionnaire measuring health-related quality of life. It is expected to be of great use in upcoming clinical research on growth disorders and growth hormone treatment in Belgium and Europe.

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佛兰德语版矮小青年生活质量(QoLISSY)问卷的验证。

目的:最近在五个欧洲国家开发了矮小青少年生活质量(QoLISSY)问卷，从儿童和父母的角度评估特发性矮小或生长激素缺乏症儿童和青少年的健康相关生活质量。除了现有的法语版本外，在比利时讲佛兰德语的地区使用QoLISSY还需要一个佛兰德语版本。方法:从比利时两家儿科内分泌科诊所招募儿童(8-18岁)及其父母完成QoLISSY横断面研究。评估Cronbach's Alpha信度和重测信度。通过与通用KIDSCREEN问卷的相关性以及根据诊断和治疗状况的组比较来检验有效性。结果:QoLISSY量表与Cronbach's Alpha量表的内部一致性在0.80 ~ 0.94(儿童版)和0.77 ~ 0.92(家长版)之间，具有可接受的一致性。子版本的重测信度相关系数r = 0.75 ~ 0.89，父版本的重测信度相关系数r = 0.58 ~ 0.85。与一般KIDSCREEN问卷有中度相关，提示建构效度。根据儿童年龄、基础诊断和身高缺陷程度，发现儿童群体之间存在差异。所有量表与欧洲QoLISSY的相关性均显著。讨论:佛兰德QoLISSY是一种心理测量学上健全、可靠、有效的矮小身材特定问卷，用于测量与健康相关的生活质量。预计在比利时和欧洲即将进行的生长障碍和生长激素治疗的临床研究中有很大的用处。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Acta Clinica Belgica MEDICINE, GENERAL & INTERNAL-

CiteScore

3.50

自引率

0.00%

发文量

期刊介绍： Acta Clinica Belgica: International Journal of Clinical and Laboratory Medicine primarily publishes papers on clinical medicine, clinical chemistry, pathology and molecular biology, provided they describe results which contribute to our understanding of clinical problems or describe new methods applicable to clinical investigation. Readership includes physicians, pathologists, pharmacists and physicians working in non-academic and academic hospitals, practicing internal medicine and its subspecialties.