The Turbid Crystal Ball: Life Plans Affected by MS.

International MS journal Pub Date : 2011-09-01
T Das, Aa Kaptein, J Haan
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Abstract

Since multiple sclerosis (MS) has its onset at a young age, it is valuable to know how it affects life plans and future perspectives of patients. Through two narratives, this aspect is discussed in this article. The first is the autobiographical journal: The Journal of a Disappointed Man by WNP Barbellion, published in 1920, and the other one is from a contemporary patient. Despite the fact that both narratives are derived from different centuries, clear similarities have been perceived in the patients life plans and future perspectives. The narratives show that the life plans of both patients were adjusted due to physical limitations. Additionally, both patients experienced sorrows for losing the ability to perform passionate hobbies during their life. Moreover, a strong sense of uncertainty was expressed in both narratives concerning their future.

浑浊的水晶球:受多发性硬化症影响的人生计划。
由于多发性硬化症(MS)在年轻时发病,因此了解它如何影响患者的生活计划和未来前景是有价值的。本文通过两种叙事方式对这方面进行了探讨。第一份是WNP Barbellion于1920年出版的自传体日记:《一个失望的人的日记》,另一份来自同时代的病人。尽管两种叙述都来自不同的世纪,但在病人的生活计划和未来前景中,我们可以看到明显的相似之处。叙述表明,由于身体限制,两名患者的生活计划都进行了调整。此外,两名患者都因在一生中失去了从事激情爱好的能力而感到悲伤。此外,关于他们未来的两种叙述都表现出强烈的不确定性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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