Expérience subjective et travail de handicap : analyse qualitative auprès de 17 patients paraplégiques

Abstract

This paper presents a phenomenological study illustrative how paraplegia may have a serious debilitating impact on the sufferer's subjective experience. Exploratory interviews were conducted with seventeen patients and the transcripts subjected to qualitative analysis. The interpretative phenomenological analysis points to the powerful ways in which paraplegia has negative impact on patients’ experience and well-being. Some of the participants describe two major approaches of their situation: dimensional (the links between disability and society, others and self) and temporal (the “disability work”). The results section gives a detailed account of these processes at work. The results are then considered in relation to relevant constructs in the literature, including grief work, illness work and identity, adaptation and acceptance.