The education of patients with rheumatoid arthritis--the knowledge and expectation of patients-the opinions of rheumatology nurses.

M Sierakowska, E Krajewska-Kułak, J Lewko, T Przeorska-Najgebauer, B Jankowiak, H Rolka, A Szyszko-Perłowska
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Abstract

Rheumatoid arthritis (RA) is a chronic, progressive, immunologically dependent, systemic diseases of connective tissue, leading to disability, cripplehood or even premature death. Helping to improve the quality of life of RA patients involves teaching them how to cope with disease-related problems of everyday life, with stress and with suffering. The aim of the presented work is to determine the following: the patients' level of knowledge about rheumatoid arthritis; their educational needs; the impact of the level of knowledge on the patients' pro-health behaviours; the knowledge of nurses and their ability to recognize patients' problems; the nurse's tasks in preparing an RA patient for self-care. The subject group consisted of patients with RA diagnosed according to The American Rheumatism Association criteria and nurses from rheumatology clinics and wards. The research method used was a survey questionnaire, which had been constructed for the purpose of the research. The research results indicate a great need of patients, especially those with early rheumatoid arthritis, for education, support and help in adaptation. At the same time, the nurses, even though they do not fully fulfil their educational role, declare a willingness to participate in organized forms of health education.

类风湿关节炎患者的教育——患者的知识与期望——风湿病科护士的意见。
类风湿性关节炎(RA)是一种慢性、进行性、免疫依赖性的结缔组织全身性疾病,可导致残疾、残废甚至过早死亡。帮助改善类风湿性关节炎患者的生活质量包括教他们如何应对日常生活中与疾病相关的问题,如何应对压力和痛苦。所提出的工作的目的是确定以下几点:患者对类风湿关节炎的知识水平;他们的教育需要;知识水平对患者亲健康行为的影响护士的知识和识别病人问题的能力;护士在为类风湿关节炎患者的自我护理做准备时的任务。研究对象包括根据美国风湿病协会标准诊断为类风湿性关节炎的患者以及风湿病诊所和病房的护士。使用的研究方法是调查问卷,这是为了研究目的而构建的。研究结果表明,患者,特别是早期类风湿关节炎患者,非常需要教育,支持和帮助适应。与此同时,护士虽然没有充分发挥其教育作用,但表示愿意参加有组织的健康教育。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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