Parental experiences of feeding problems in their infants with Down syndrome.

Eilene Lewis, Alta Kritzinger
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引用次数: 40

Abstract

Although feeding difficulties in infants with Down syndrome are described in the literature, the experiences of parents regarding the feeding problems of their infants are largely omitted. In order to promote closer collaboration with families and speech-language therapists in early communication intervention, the study investigated some experiences of a group of parents concerning the feeding problems of their infants with Down syndrome. A descriptive survey approach was implemented to collect quantitative data. The results revealed the type of feeding problems and associated conditions occurring in the infants of the twenty participants; the type of feeding methods used; the assistance received during the feeding problems; the emotions experienced in relation to the feeding problems in their infants as well as suggestions made by the participants regarding the management of early feeding problems. Numerous feeding problems occurred in the infants and the variety of emotions experienced by the participants indicated that feeding therapy and counseling were required. As a result of the different conditions underlying the feeding problems of the participants' infants, a comprehensive approach, which included therapeutic and medical intervention, was necessary. In order to provide effective early communication intervention services from birth, the results indicated that the knowledge, skills and sensitivity of speech language therapists to identify caregiver needs, to provide appropriate family-focused intervention and to make recommendations regarding the management of feeding problems in infants with Down syndrome is of great importance.

父母对唐氏综合症婴儿喂养问题的经验。
虽然文献中描述了唐氏综合症婴儿的喂养困难,但父母关于婴儿喂养问题的经验在很大程度上被省略了。为了促进与家庭和语言治疗师在早期沟通干预中的更紧密合作,本研究调查了一组父母关于唐氏综合症婴儿喂养问题的一些经历。采用描述性调查方法收集定量数据。结果揭示了20名参与者的婴儿喂养问题和相关情况的类型;使用的喂养方法类型;在喂养问题期间获得的援助;与婴儿喂养问题相关的情绪体验,以及参与者对早期喂养问题管理的建议。许多喂养问题发生在婴儿身上,参与者经历的各种情绪表明需要喂养治疗和咨询。由于参与者的婴儿喂养问题的潜在条件不同,因此有必要采取包括治疗和医疗干预在内的综合办法。为了提供有效的早期沟通干预服务,从出生开始,言语语言治疗师的知识,技能和敏感性识别照顾者的需求,提供适当的以家庭为中心的干预,并就唐氏综合征婴儿喂养问题的管理提出建议是非常重要的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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