"I got a bit of closure": A thematic analysis of experiences of attending a post intensive care multidisciplinary follow up clinic.

Abstract

Background: The impact of critical illness is recognised; however, interventions to support optimal recovery post-ICU are less clear. There is no single accepted model of follow-up services and an uncertain evidence base.

Methods: Thematic analysis was used to analyse semi-structured interviews with 27 ICU-survivors from an ICU in the southwest of Britain on their experience of attending a multi-disciplinary (MDT) follow up clinic. The participants' follow up clinic letters were reviewed to identify related actions by team members.

Results: Eight themes emerged from the data: gaining understanding, family involvement, addressing the future, safe space to explore experiences, clinic structure, virtual versus face-to-face appointments, and perception of staff. Clinic letters evidence a range of onwards referrals and provision of advice.

Conclusion: Participants valued the MDT follow up clinic. The option to attend in person or virtually increased accessibility. The opportunity to enhance understanding of critical care related experiences and integrate this with self identity and ongoing recovery processes was meaningful for patients. Several participants were referred for further medical and psychological intervention. Patient experience and need should be at the heart of informing potential outcome measurement.