Patient experiences and unmet needs in diagnosis and treatment of metastatic colorectal cancer: results of a US survey.

Abstract

Background: Metastatic colorectal cancer (mCRC) can impact patients beyond their physical health. We conducted a survey to evaluate patient perspectives on care and treatment experience.

Methods: The survey was conducted by The Harris Poll in the United States. Adults with mCRC were recruited via online panels and patient advocacy groups. Sampling precision was measured via a Bayesian credible interval; data were accurate to within 5.3% points (95% confidence level).

Results: Of the 344 respondents, 46% identified as non-Hispanic White, 25% as non-Hispanic Black/African American, and 22% as Hispanic; the mean age was 56 years. Overall, 31% reported that their mCRC diagnosis was delayed, with 83% wishing more information had been provided by their health-care provider at diagnosis. Mental health resources were difficult to access for 53% of the respondents and 88% experienced financial impacts because of their mCRC diagnosis. Furthermore, 49% reported negative impacts from health inequities affecting their care. Overall, 67% of the respondents wished for more power in treatment decision-making.

Conclusions: The survey highlights key unmet medical and non-medical patient needs in mCRC care. Access to informational resources, including for financial assistance, and a greater emphasis on shared treatment decision-making would help patients feel valued and improve their mCRC experience.