Beyond the child: A systematic review of parental wellbeing and family functioning in paediatric colorectal conditions

IF 2.3 2区医学 Q1 PEDIATRICS

Journal of pediatric surgery Pub Date : 2027-01-01 Epub Date: 2026-10-12 DOI:10.1016/j.jpedsurg.2026.163523

Caryn Koo, Sadie Chiu, Sebastian K. King, Frank Muscara, Misel Trajanovska

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引用次数: 0

Abstract

Introduction

Families of children with anorectal malformation (ARM) and Hirschsprung disease (HD) often experience ongoing caregiving demands extending beyond the child's medical management. This systematic review aimed to synthesise quantitative literature examining parental wellbeing and family functioning outcomes among families of children with ARM or HD.

Methods

Using the PRISMA protocol, a systematic search was conducted across Ovid Medline, Embase, Web of Science, PsycINFO, and CINAHL. Eligible studies included quantitative studies evaluating psychosocial outcomes relating to parents or families of children (aged <18 years) surgically treated for ARM or HD. Data extraction and quality appraisal using the Joanna Briggs Institute tool were completed independently by two reviewers.

Results

From 1205 records identified, nine studies met inclusion criteria and were synthesised without meta-analysis due to methodological heterogeneity. Across studies, families reported challenges relating to psychological wellbeing, parenting stress, caregiving burden, and family functioning, particularly in the context of ongoing bowel dysfunction and faecal incontinence. However, there was also considerable variability in resilience and adaptation among families.

Discussion

Current evidence suggested that ARM and HD may have significant psychosocial impacts on the broader family unit. Future research should prioritise longitudinal and family-centred approaches to better inform integrated models of biopsychosocial care.

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超出了孩子:父母的幸福和家庭功能的系统回顾儿科结直肠的条件。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of pediatric surgery 医学-外科

CiteScore

1.10

自引率

12.50%

发文量

569

审稿时长

38 days

期刊介绍： The journal presents original contributions as well as a complete international abstracts section and other special departments to provide the most current source of information and references in pediatric surgery. The journal is based on the need to improve the surgical care of infants and children, not only through advances in physiology, pathology and surgical techniques, but also by attention to the unique emotional and physical needs of the young patient.