Disease Experiences of Adolescents With Chronic Kidney Disease: A Phenomenological Study.

IF 1.5 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Journal of evaluation in clinical practice Pub Date : 2026-10-01 DOI:10.1111/jep.70644

Nagihan Fatma Harmancı, Gökçe Demir

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引用次数: 0

Abstract

Objective: This study aimed to explore the experiences of adolescents aged 15-17 years diagnosed with chronic kidney disease (CKD), their perceptions of the illness process, and its impact on daily life, in order to inform pediatric nursing practice and multidisciplinary supportive care approaches.

Methods: This study was conducted using a phenomenological design. Face-to-face semi-structured interviews were conducted with 10 adolescents selected through criterion sampling. Data were collected using a sociodemographic form and an interview guide. The data were analysed using thematic analysis with MAXQDA 2022.

Results: Three main themes and eleven sub-themes were identified: "Pre-illness Experiences," "Illness Experiences," and "Expectations for the Future." Participants reported that CKD caused changes not only physiologically but also psychologically and socially. Common challenges included peer relationship disruptions, emotional difficulties, and daily routine limitations.

Conclusion: Adolescents with CKD experience multidimensional challenges affecting their physical, psychological, and social lives. Addressing these challenges requires comprehensive and structured support.

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来源期刊

Journal of evaluation in clinical practice 医学-卫生保健

CiteScore

4.80

自引率

4.20%

发文量

143

审稿时长

3-8 weeks

期刊介绍： The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.