EXCEL-Punjabi: the process of using a community based participatory research approach for a culturally-tailored exercise oncology intervention.

IF 4.1 Q1 Social Sciences
Mannat Bansal, Imrose Bhullar, Sarbjit Jawandha, Chandan Sangha, Jagbir Kaur, Gurleen Brar, Tanvir C Turin, Meghan H McDonough, S Nicole Culos-Reed
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引用次数: 0

Abstract

Background: Physical activity is an effective evidence-based intervention with extensive physical and psychosocial benefits for individuals living with and beyond cancer. Despite being the largest visible minority group in Canada, uptake of currently available exercise interventions, such as the Canada-wide Exercise for Cancer to Enhance Living Well (EXCEL) study, is low among individuals of South Asian heritage living with and beyond cancer. Culturally tailored programming may help to address barriers to participation.

Methods: Using a community-based participatory research (CBPR) approach, we worked with a Punjabi Advisory Board to identify culturally specific gaps and adaptation needs for the EXCEL intervention. CBPR activities included: capacity bridging, identifying community needs and priorities, co-designing and tailoring the intervention, ethics submission, and collaboration on research outputs.

Results: These collaborative efforts resulted in the development of the EXCEL-Punjabi, a culturally tailored exercise oncology intervention. Specific changes made to the EXCEL study included language of delivery, family involvement, educational handouts rather than webinars, culturally specific recruitment strategies, and one-on-one support for completing questionnaires.

Conclusion: Ongoing collaboration with the Punjabi Advisory Board will allow for quality improvement of the intervention. The work outlined herein provides transparency of the CBPR process followed for the cultural tailoring of pre-existing exercise oncology programming. Future work will evaluate the feasibility and effectiveness of the EXCEL-Punjabi intervention. Overall, building a culturally tailored intervention with community input allows for more underserved individuals to experience the physical and psychosocial benefits of exercise oncology programming. This work represents a step towards more equitable supportive cancer care.

excel -旁遮普:使用基于社区的参与式研究方法进行文化定制运动肿瘤干预的过程。
背景:体育活动是一种有效的基于证据的干预措施,对癌症患者和非癌症患者具有广泛的身体和心理社会益处。尽管南亚裔是加拿大最大的少数族裔群体,但目前可用的运动干预措施,如加拿大范围内的癌症运动以提高生活质量(EXCEL)研究,在患有癌症或未患癌症的南亚裔人群中接受程度很低。根据文化量身定制的方案可能有助于解决参与的障碍。方法:采用基于社区的参与式研究(CBPR)方法,我们与旁遮普咨询委员会合作,确定EXCEL干预的文化特定差距和适应需求。CBPR活动包括:能力衔接、确定社区需求和优先事项、共同设计和调整干预措施、伦理提交以及在研究成果方面的合作。结果:这些合作的努力导致了EXCEL-Punjabi的发展,这是一种文化定制的运动肿瘤干预。EXCEL研究的具体变化包括:演讲语言、家庭参与、教育讲义(而不是网络研讨会)、特定文化的招聘策略,以及完成问卷的一对一支持。结论:与旁遮普咨询委员会的持续合作将有助于提高干预措施的质量。本文概述的工作提供了CBPR过程的透明度,随后进行了预先存在的运动肿瘤学计划的文化定制。未来的工作将评估excel -旁遮普干预的可行性和有效性。总的来说,通过社区的投入,建立一个适合文化的干预措施,可以让更多缺乏服务的个体体验到运动肿瘤学项目的身体和心理上的好处。这项工作代表着朝着更公平的支持性癌症治疗迈出了一步。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Research Involvement and Engagement
Research Involvement and Engagement Social Sciences-Health (social science)
CiteScore
5.50
自引率
0.00%
发文量
60
审稿时长
16 weeks
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