Navigating Stigma and Support: Realist Evaluation of Support for Migrant Informal Caregivers of Loved Ones with Mental Illness.

IF 2.1 4区 医学 Q3 HEALTH POLICY & SERVICES
Malin H L Hollaar, Puck Buis, Maria Smedts, Özgül Uysal-Bozkir, Paul L Kocken, Semiha Denktaş
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Abstract

'They Are Not Mental?!' (TANM) is a peer educational intervention aimed at supporting migrant informal caregivers of people with mental illness. In the short term, the intervention focuses on promoting openness about mental health, increasing understanding of mental illness and caregiver support, and fostering trust with the healthcare sector. This study examined whether stakeholders perceived changes in these short-term outcomes and which intervention elements contributed to these changes. A realist evaluation was conducted to refine our initial program theory, through 27 interviews with ambassadors, program staff and participants, 10 observations of peer educational sessions and 76 post-questionnaires completed by participants. Findings were synthesized into context-mechanism-outcome configurations forming a refined program theory, which was validated in a focus group with four representatives of the coordinating organizations. Across groups, those involved in TANM perceived progress towards its short-term outcomes, but levels of openness and subsequent help-seeking varied. These differences reflected variation in contextual factors, namely the presence of shared cultural frames, prior acquaintance between ambassadors and participants, shared language and continued availability of ambassadors and the Family-Experience-Expert beyond the formal implementation period. Trust was fostered through these factors and enabled more transformative processes such as peer education and sharing of personal experiences, which normalized mental health discussions and help-seeking behaviours. Ambassadors as trusted peers are central to achieve TANM's aims of encouraging openness, knowledge exchange, and help-seeking. To sustain its impact, future implementations should ensure ambassadors are peers and are structurally supported. Moreover, these types of interventions need complementary, system-level actions - including investments in culturally sensitive care practices.

导航耻辱和支持:对患有精神疾病的亲人的流动非正式照顾者的支持的现实主义评价。
“他们没有精神?”(TANM)是一项同伴教育干预,旨在支持精神疾病患者的流动非正式照护者。在短期内,干预措施的重点是促进对精神卫生的开放,增加对精神疾病和照顾者支持的了解,并促进与卫生保健部门的信任。本研究考察了利益相关者是否感知到这些短期结果的变化,以及哪些干预因素促成了这些变化。通过27次对大使、项目工作人员和参与者的访谈,10次对同伴教育会议的观察,以及76份参与者完成的问卷调查,我们进行了现实主义评估,以完善我们最初的项目理论。研究结果被综合到情境-机制-结果配置中,形成了一个完善的项目理论,并在一个由四位协调组织代表组成的焦点小组中得到了验证。在不同的小组中,参与TANM的人在短期结果方面取得了进展,但开放程度和随后的求助程度各不相同。这些差异反映了环境因素的差异,即存在共同的文化框架、大使和参与者之间的事先相识、共同的语言以及大使和家庭经验专家在正式实施期之后继续可用。通过这些因素培养了信任,并使同伴教育和分享个人经历等更具变革性的过程成为可能,从而使心理健康讨论和寻求帮助的行为正常化。大使作为值得信赖的同伴,是实现TANM鼓励开放、知识交流和寻求帮助的目标的核心。为了维持其影响,未来的实施应确保大使是对等的,并在结构上得到支持。此外,这些类型的干预措施需要互补的系统级行动,包括对具有文化敏感性的护理做法进行投资。
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来源期刊
CiteScore
5.30
自引率
3.70%
发文量
133
期刊介绍: Community Mental Health Journal focuses on the needs of people experiencing serious forms of psychological distress, as well as the structures established to address those needs. Areas of particular interest include critical examination of current paradigms of diagnosis and treatment, socio-structural determinants of mental health, social hierarchies within the public mental health systems, and the intersection of public mental health programs and social/racial justice and health equity. While this is the journal of the American Association for Community Psychiatry, we welcome manuscripts reflecting research from a range of disciplines on recovery-oriented services, public health policy, clinical delivery systems, advocacy, and emerging and innovative practices.
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