Megan Kaynak, Emma Poon, Ishith Seth, Jawed Noori, Angus Lee
{"title":"Quality of Life and Adjustment Evaluation Tools for Persons Living With an Ostomy: A Narrative Review.","authors":"Megan Kaynak, Emma Poon, Ishith Seth, Jawed Noori, Angus Lee","doi":"10.1097/WON.0000000000001312","DOIUrl":null,"url":null,"abstract":"<p><strong>Abstract: </strong>The purpose of this narrative review was to identify instruments used to evaluate health-related quality of life (QoL) among individuals living with an ostomy. PubMed, Web of Science, Cochrane CENTRAL, and Scopus databases were searched from January 1948 to May 2023. We searched for studies describing the development and validation of instruments used to measure QoL in people living with an ostomy. Twelve instruments were identified, 7 of which were developed specifically for ostomy populations and were the focus of this review. We assert that generic QoL scales are insufficient for capturing the unique physical, psychological, and social impacts of living with an ostomy. We found 7 ostomy-specific instruments. Selection of an appropriate tool should be guided by the clinical context, available time, and population served. Shorter instruments are recommended for use in the clinical setting, whereas a more comprehensive instrument was recommended for a detailed evaluation in the clinical setting or use in the research setting.</p>","PeriodicalId":520700,"journal":{"name":"Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society","volume":"53 5","pages":"386-391"},"PeriodicalIF":1.8000,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1097/WON.0000000000001312","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Abstract: The purpose of this narrative review was to identify instruments used to evaluate health-related quality of life (QoL) among individuals living with an ostomy. PubMed, Web of Science, Cochrane CENTRAL, and Scopus databases were searched from January 1948 to May 2023. We searched for studies describing the development and validation of instruments used to measure QoL in people living with an ostomy. Twelve instruments were identified, 7 of which were developed specifically for ostomy populations and were the focus of this review. We assert that generic QoL scales are insufficient for capturing the unique physical, psychological, and social impacts of living with an ostomy. We found 7 ostomy-specific instruments. Selection of an appropriate tool should be guided by the clinical context, available time, and population served. Shorter instruments are recommended for use in the clinical setting, whereas a more comprehensive instrument was recommended for a detailed evaluation in the clinical setting or use in the research setting.
摘要：本叙述性综述的目的是确定用于评估造口术患者健康相关生活质量（QoL）的工具。检索了1948年1月至2023年5月的PubMed、Web of Science、Cochrane CENTRAL和Scopus数据库。我们检索了描述用于测量造口术患者生活质量的仪器的开发和验证的研究。确定了12种器械，其中7种是专门为造口人群开发的，是本综述的重点。我们认为，一般的生活质量量表不足以反映造口术后独特的生理、心理和社会影响。我们发现了7种造口专用器械。应根据临床情况、可用时间和服务人群来选择适当的工具。建议在临床环境中使用较短的仪器，而在临床环境中进行详细评估或在研究环境中使用更全面的仪器。
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