Standardising Access to Sensitive Data with Machine-Actionable Access Conditions.

IF 2.2 Q3 HEALTH CARE SCIENCES & SERVICES
International Journal of Population Data Science Pub Date : 2026-09-17 eCollection Date: 2026-01-01 DOI:10.23889/ijpds.v11i1.3454
Lucas van der Meer, Ahmad Hesam, Jetze Touber, Ricarda Braukmann, Deborah Thorpe, Emilie Kraaikamp, Tom Emery
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引用次数: 0

Abstract

Introduction: While many countries have invested heavily in secure technical infrastructures such as Trusted Research Environments (TREs), the rules that determine who may access which data, under what conditions, and for which purposes are still expressed primarily as natural language legal and administrative documents, with little or no accompanying machine-readable representation. This limits automation, interoperability, and scalability, particularly for research that spans multiple data holders.

Objectives: This paper examines these challenges through the Dutch social science data landscape and presents a framework for standardising access governance using machine-actionable access conditions, with the aim of bridging the gap between secure technical environments and scalable access governance.

Methods: Building on the Open Digital Rights Language (ODRL), we propose a library of reusable access condition templates and a Data Access Broker service. The framework was developed through iterative consultation with data holders in the Dutch SSH domain and draws on ongoing developments within the European Open Science Cloud (EOSC) and related data sharing initiatives.

Results: We demonstrate that machine-actionable access conditions can operationalise legal and organisational oversight in a transparent, auditable, and interoperable way without replacing it. The proposed framework addresses key challenges identified in the Dutch context - including fragmentation, administrative burden, and inconsistent decision-making - and is applicable across European data infrastructures.

Conclusions: The approach does not replace legal or organisational oversight, but operationalises it in a transparent, auditable, and interoperable way. While grounded in the Dutch context and the ODISSEI infrastructure, the challenges addressed are common across Europe. The paper presents a concrete implementation pathway supporting ongoing developments within EOSC and related data sharing initiatives.

使用机器可操作的访问条件对敏感数据进行标准化访问。
导言:虽然许多国家在可信研究环境(TREs)等安全技术基础设施方面投入了大量资金,但决定谁可以在什么条件下访问哪些数据以及出于何种目的的规则仍然主要以自然语言的法律和行政文件表示,很少或没有伴随的机器可读表示。这限制了自动化、互操作性和可扩展性,特别是对于跨越多个数据持有者的研究。目标:本文通过荷兰社会科学数据景观考察了这些挑战,并提出了一个使用机器可操作访问条件标准化访问治理的框架,旨在弥合安全技术环境和可扩展访问治理之间的差距。方法:在开放数字版权语言(ODRL)的基础上,我们提出了一个可重用的访问条件模板库和一个数据访问代理服务。该框架是通过与荷兰SSH领域的数据持有者进行反复磋商而开发的,并借鉴了欧洲开放科学云(EOSC)和相关数据共享计划的持续发展。结果:我们证明了机器可操作的访问条件可以以透明、可审计和可互操作的方式操作法律和组织监督,而无需替换它。拟议的框架解决了在荷兰背景下确定的关键挑战——包括碎片化、管理负担和不一致的决策——并适用于整个欧洲的数据基础设施。结论:该方法不会取代法律或组织的监督,而是以透明、可审计和可互操作的方式实施监督。虽然基于荷兰的背景和ODISSEI的基础设施,但所面临的挑战在整个欧洲都是共同的。本文提出了一个具体的实施途径,支持EOSC和相关数据共享倡议的持续发展。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.50
自引率
0.00%
发文量
386
审稿时长
20 weeks
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