{"title":"National Prevalence and Care Needs of Dementia in Adults Aged >=55 Years: Findings from the China Mental Health Survey.","authors":"Zhaorui Liu, Guangming Xu, Ruoxi Ding, Chao Ma, Yueqin Huang, Lingjiang Li, Tingting Zhang, Jie Yan, Yaqin Yu, Xiufeng Xu, Zhizhong Wang, Yifeng Xu, Tao Li, Huifang Yin, Xiangdong Xu, Limin Wang, Yongping Yan, Shuiyuan Xiao","doi":"10.1016/j.tjpad.2026.100659","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Dementia is a major global mortality cause and key driver of disability in older adults, imposing multidimensional burdens. As China's population ages, accurate prevalence estimates and care need assessments are essential for equitable policy planning. This study investigates young- and late-onset dementia prevalence while comparing health service utilization and unmet care needs between affected and unaffected populations.</p><p><strong>Methods: </strong>Utilizing China Mental Health Survey data (2013-2015) with multistage probability sampling, we identified 12,663 nationally representative adults aged ≥55 years. Of these, 10,839 completed Stage I assessments and 2,261 received Stage II evaluations, supplemented by psychiatric assessments of initial non-participants (n=197). Dementia diagnosis followed DSM-IV criteria via validated cognitive/functional instruments. Health service utilization and multidimensional care needs (ADLs/IADLs/safety) were quantified through participant/informant interviews.</p><p><strong>Results: </strong>Among 2 458 participants assessed, dementia prevalence was 2.65% (55-64y) and 5.56% (≥65y). Rural residents showed consistently higher rates than urban counterparts across age groups. Significant education gradients emerged, with urban prevalence decreasing with higher education while rural patterns differed. Individual living with dementia required substantially more care for both samples (55-64 years: 37.4% vs 11..9%, +81.3 monthly hours; 65+ years: 62.6% vs 13.4%, +88.8 monthly hours) without increased health service utilization.</p><p><strong>Conclusion: </strong>This national study reveals substantial dementia burden in China, exposing systemic healthcare deficiencies through misaligned functional care needs and medical engagement. The neglect of chronic disability management in aging populations necessitates urgent integration of prevention strategies and tailored support frameworks within primary care systems.</p>","PeriodicalId":22711,"journal":{"name":"The Journal of Prevention of Alzheimer's Disease","volume":"13 9","pages":"100659"},"PeriodicalIF":7.8000,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13522358/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"The Journal of Prevention of Alzheimer's Disease","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1016/j.tjpad.2026.100659","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2026/8/19 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"BUSINESS","Score":null,"Total":0}
引用次数: 0
Abstract
Background: Dementia is a major global mortality cause and key driver of disability in older adults, imposing multidimensional burdens. As China's population ages, accurate prevalence estimates and care need assessments are essential for equitable policy planning. This study investigates young- and late-onset dementia prevalence while comparing health service utilization and unmet care needs between affected and unaffected populations.
Methods: Utilizing China Mental Health Survey data (2013-2015) with multistage probability sampling, we identified 12,663 nationally representative adults aged ≥55 years. Of these, 10,839 completed Stage I assessments and 2,261 received Stage II evaluations, supplemented by psychiatric assessments of initial non-participants (n=197). Dementia diagnosis followed DSM-IV criteria via validated cognitive/functional instruments. Health service utilization and multidimensional care needs (ADLs/IADLs/safety) were quantified through participant/informant interviews.
Results: Among 2 458 participants assessed, dementia prevalence was 2.65% (55-64y) and 5.56% (≥65y). Rural residents showed consistently higher rates than urban counterparts across age groups. Significant education gradients emerged, with urban prevalence decreasing with higher education while rural patterns differed. Individual living with dementia required substantially more care for both samples (55-64 years: 37.4% vs 11..9%, +81.3 monthly hours; 65+ years: 62.6% vs 13.4%, +88.8 monthly hours) without increased health service utilization.
Conclusion: This national study reveals substantial dementia burden in China, exposing systemic healthcare deficiencies through misaligned functional care needs and medical engagement. The neglect of chronic disability management in aging populations necessitates urgent integration of prevention strategies and tailored support frameworks within primary care systems.
背景:痴呆症是全球主要的死亡原因和老年人残疾的主要驱动因素,造成多方面的负担。随着中国人口老龄化,准确的患病率估计和护理需求评估对于公平的政策规划至关重要。本研究调查了年轻和晚发性痴呆的患病率,同时比较了受影响人群和未受影响人群之间的卫生服务利用率和未满足的护理需求。方法:利用2013-2015年中国心理健康调查数据,采用多阶段概率抽样方法,选取12663名年龄≥55岁的具有全国代表性的成年人。其中,10,839人完成了第一阶段评估,2,261人接受了第二阶段评估,并对最初的非参与者进行了精神病学评估(n=197)。通过有效的认知/功能仪器,痴呆诊断遵循DSM-IV标准。通过参与者/被调查者访谈,对卫生服务利用和多维护理需求(ADLs/IADLs/安全性)进行量化。结果:在评估的2458名参与者中,痴呆患病率为2.65%(55-64岁)和5.56%(≥65岁)。在各个年龄组中,农村居民的发病率始终高于城市居民。出现了显著的教育梯度,城市患病率随着教育程度的提高而下降,而农村患病率则有所不同。痴呆患者在这两个样本中都需要更多的护理(55-64岁:37.4% vs 11.4%)。9%,每月+81.3小时;65岁以上:62.6% vs 13.4%,每月88.8小时),没有增加卫生服务的利用率。结论:这项全国性的研究揭示了中国存在的严重的痴呆负担,通过失调的功能性护理需求和医疗参与暴露了系统性的医疗保健缺陷。忽视老龄人口的慢性残疾管理,迫切需要在初级保健系统内整合预防战略和量身定制的支持框架。
期刊介绍:
The JPAD Journal of Prevention of Alzheimer’Disease will publish reviews, original research articles and short reports to improve our knowledge in the field of Alzheimer prevention including: neurosciences, biomarkers, imaging, epidemiology, public health, physical cognitive exercise, nutrition, risk and protective factors, drug development, trials design, and heath economic outcomes.JPAD will publish also the meeting abstracts from Clinical Trial on Alzheimer Disease (CTAD) and will be distributed both in paper and online version worldwide.We hope that JPAD with your contribution will play a role in the development of Alzheimer prevention.