From Collaboration to Impact: Insights from the DARE UK Community Building programme.

IF 2.2 Q3 HEALTH CARE SCIENCES & SERVICES
International Journal of Population Data Science Pub Date : 2026-07-06 eCollection Date: 2026-01-01 DOI:10.23889/ijpds.v11i5.3733
Najmeh Modarres, Elizabeth Waind, Katie Porter, Cassandra Gould Van Praag
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引用次数: 0

Abstract

How can effective community building transform a fragmented Trusted Research Environment (TRE) ecosystem into a connected, standardised one? And how can it elevate the work of data custodians, data scientists and others across the sector, while effectively involving the public? These are some of the questions Data and Analytics Research Environments UK (DARE UK) has explored as it reflects on the development of its community groups. DARE UK's community groups are collaborative initiatives that bring together partners from across the UK data research landscape to co-create work aligned with the DARE UK mission to establish a safe and collaborative UK network of Trusted Research Environments (TREs). Ahead of the 2026 IPDLN Conference, DARE UK has funded nine Interest Groups - open-ended groups focused on broad challenges within the scope of the DARE UK programme - and four Working Groups, which are short-term collaborative efforts typically linked to an Interest Group and focused on specific pieces of work. Six of these groups have now been active for over a year. In this session, we will share case studies from selected active community groups and lessons learned about what it takes to establish a community that can sustain and govern itself. We will discuss the processes involved in developing a charter and code of conduct, defining what a successful community looks like, determining effective funding models based on our experience, and most importantly, meaningfully engaging and involving the public throughout.

从合作到影响:来自DARE英国社区建设项目的见解。
有效的社区建设如何将一个碎片化的可信研究环境(Trusted Research Environment, TRE)生态系统转变为一个连接的、标准化的生态系统?它如何提升数据管理员、数据科学家和整个行业其他人的工作水平,同时有效地让公众参与进来?这些是Data and Analytics Research Environments UK (DARE UK)在反思其社区团体的发展时所探索的一些问题。DARE UK的社区团体是一项协作计划,汇集了来自英国数据研究领域的合作伙伴,共同创建与DARE UK使命一致的工作,以建立一个安全协作的英国可信研究环境(TREs)网络。在2026年IPDLN会议之前,DARE英国资助了9个兴趣小组(专注于DARE英国计划范围内的广泛挑战的开放式小组)和4个工作组(通常与兴趣小组相关的短期合作努力,专注于具体工作)。其中六个组织已经活跃了一年多。在本次会议上,我们将分享一些活跃社区团体的案例研究,以及如何建立一个能够自我维持和管理的社区的经验教训。我们将讨论制定章程和行为准则所涉及的过程,定义一个成功的社区是什么样子,根据我们的经验确定有效的资助模式,最重要的是,在整个过程中有意义地让公众参与进来。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.50
自引率
0.00%
发文量
386
审稿时长
20 weeks
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