Katherine O'Sulivan, Astrid Dahl, Katherine Bishop, Petros Kotsagiannidis, Kavya Baswana, Diane Pallister, Helen Duckworth, Alan Bagnall, Phil Waywell
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引用次数: 0
Abstract
The PANORAMA project, a DARE UK TREvolution Early Adopters Programme, explored whether three NHS Secure Data Environments (SDEs) in the North of England could establish the foundations for federated analytics through shared governance, operational alignment, and emerging technical tools. The project comprised three technical work packages examining (1) the use of the SATRE specification to support a federated information governance (IG) framework, (2) the technical feasibility of using 5Safes TES to support federated analytics, and (3) SACRO (Semi-Automated Checking of Research Outputs) to to federated output checking, with robust public and professional consultation. PANORAMA demonstrates that meaningful federation requires a combination of organisational, governance and technical readiness, none of which are yet fully mature. First, technical tools designed to support federation-such as federated analytics and semi-automated output-checking-remain in active development. Partners emphasised the need for solutions that are stable, end-to-end, and "plug-and-play" to minimise burden on TRE operations teams and researchers. Second, federated information governance requires substantial professional oversight, the establishment of a shared vocabulary, and clear specifications of tolerance and equivalence between organisations. Public views broadly supported federated research, but had concerns over data security - which should be considered across all aspects of federation. Finally, the project highlighted that operationalising cross-organisation ways of working-spanning IG teams, technical staff, and research support-requires sustained coordination, central oversight, and ongoing monitoring. Federation is therefore achievable but dependent on maturing technical tools, finding equivalence to establish shared governance processes, and embedding continuous joint operational assurance.
PANORAMA项目是DARE UK revolution早期采用者计划的一部分,该项目探索了英格兰北部的三个NHS安全数据环境(SDEs)是否可以通过共享治理、操作一致性和新兴技术工具为联邦分析奠定基础。该项目包括三个技术工作包,检查(1)使用SATRE规范来支持联邦信息治理(IG)框架,(2)使用5Safes TES来支持联邦分析的技术可行性,以及(3)SACRO(研究产出半自动检查)到联邦输出检查,并提供强大的公众和专业咨询。PANORAMA表明,有意义的联邦需要组织、治理和技术准备的结合,而这些都还没有完全成熟。首先,旨在支持联邦的技术工具(如联邦分析和半自动输出检查)仍在积极开发中。合作伙伴强调需要稳定、端到端和“即插即用”的解决方案,以尽量减少TRE运营团队和研究人员的负担。其次,联合信息治理需要大量的专业监督,建立共享词汇表,以及组织之间宽容和对等的明确规范。公众普遍支持联邦研究,但担心数据安全——这应该在联邦的各个方面加以考虑。最后,该项目强调,跨组织的工作方式——跨IG团队、技术人员和研究支持——需要持续的协调、中央监督和持续监测。因此,联合是可以实现的,但依赖于成熟的技术工具,找到建立共享治理过程的等价,以及嵌入持续的联合操作保证。