Management strategies for home parenteral support related to quality of life in intestinal failure patients: A scoping review.

Intestinal Failure (New York, N.Y.) Pub Date : 2025-12-19 eCollection Date: 2026-01-01 DOI:10.1016/j.intf.2025.100343
Anna Bjerklund, Viktoria Westerlund, Louise Bangsgaard Antonsen, Sara Andersson
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Abstract

Background: Quality of life in patients with chronic intestinal failure is challenged by the need for long-term home parenteral support. The aim of this study was to identify healthcare initiated home parenteral support management strategies related to quality of life in patients with intestinal failure.

Methods: A systematic search was conducted across two databases (PUBMED, CINAHL) on the 27th of April 2024. Search results were mapped according to the JBI manual with the extraction tool Covidence. Non-pharmacological home parenteral support management strategies were included. Full-text screening was performed independently by four researchers, and three researchers systematically processed the data extraction pairwise.

Results: A total of 18 studies were included. Eleven unique home parenteral support management strategies were identified and grouped into 3 themes: prescription, administration, and tools for self-care. Infusion frequency and infusion volume were the most frequently evaluated strategies with positive influence on quality of life. Seven other strategies with positive influence were identified and most high-quality evidence was found for education and counselling.

Conclusion: This study indicates that management strategies of home parenteral support can play a valuable role in improving the quality of life for those depending on long-term intravenous treatment. However, there is a lack of high-quality evidence and only a few strategies have been investigated in more than two studies.

与肠衰竭患者生活质量相关的家庭肠外支持管理策略:范围综述。
背景:慢性肠衰竭患者的生活质量受到长期家庭肠外支持需求的挑战。本研究的目的是确定与肠衰竭患者生活质量相关的医疗保健发起的家庭肠外支持管理策略。方法:于2024年4月27日对PUBMED、CINAHL两个数据库进行系统检索。使用提取工具covid - ence根据JBI手册绘制搜索结果。包括非药物家庭肠外支持管理策略。全文筛选由4位研究者独立完成,3位研究者对数据提取进行两两系统处理。结果:共纳入18项研究。确定了11种独特的家庭肠外支持管理策略,并将其分为3个主题:处方、管理和自我保健工具。输注频率和输注量是最常被评估的对生活质量有积极影响的策略。确定了其他七个具有积极影响的战略,并发现了教育和咨询方面的最高质量证据。结论:本研究表明,家庭外肠支持的管理策略可以在改善长期静脉注射治疗患者的生活质量方面发挥重要作用。然而,缺乏高质量的证据,只有少数策略在两项以上的研究中被调查。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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