Investigating the Multifaceted Needs and Challenges of Family Caregivers of Individuals with Spinal Cord Injury: A Qualitative Study.

IF 1 Q4 REHABILITATION

OCCUPATIONAL THERAPY IN HEALTH CARE Pub Date : 2026-05-07 DOI:10.1080/07380577.2026.2667520

Somayyeh Mohammadi, Asia Cai, Heather Cathcart, Brooke Page, Elena Pauly, Beth Erlander, Julie M Robillard, David G T Whitehurst, William C Miller

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引用次数: 0

Abstract

This qualitative study explored the challenges faced by family caregivers of individuals with spinal cord injury (fcSCI) and the contributing factors to these challenges. Thirteen field experts, including fcSCI and clinical and professional experts, participated. Ten vignettes showcasing various issues faced by fcSCI were used to facilitate the discussion. Thematic analyses of semi-structured interviews identified two themes: (i) decline in wellbeing: "It just weighs on you," which explained the psychological, social, and physical challenges faced by fcSCI, and (ii) lacking caregiver preparedness:"There's just so many things to know," which describes the diverse responsibilities that fcSCI take. Findings emphasized the negative consequences of providing long-term care and the importance of improving caregiver readiness. Facilitating access to educational resources is an essential step in supporting family caregivers.

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调查脊髓损伤患者家庭照顾者的多方面需求和挑战：一项定性研究。

本定性研究探讨了脊髓损伤（fcSCI）患者的家庭照顾者所面临的挑战以及造成这些挑战的因素。包括fcSCI、临床专家和专业专家在内的13位专家参加了会议。会议使用了十个小短片，展示fcSCI面临的各种问题，以促进讨论。半结构化访谈的主题分析确定了两个主题：(1)幸福感下降：“它只是在你身上”，这解释了fcSCI面临的心理、社会和身体挑战；(2)缺乏护理准备：“有太多事情要知道”，这描述了fcSCI承担的各种责任。研究结果强调了提供长期护理的负面影响以及提高护理人员准备程度的重要性。便利获得教育资源是支持家庭照顾者的重要步骤。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

OCCUPATIONAL THERAPY IN HEALTH CARE REHABILITATION-

CiteScore

1.90

自引率

0.00%

发文量

期刊介绍： Occupational Therapy in Health Care is a journal of contemporary practice in occupational therapy. It provides occupational therapy practitioners with a forum to stay up-to-date on current methods and theories in the field. Focused on everyday practice, the journal addresses the concerns of new and experienced therapists, presenting innovations in client evaluations and treatments, current research findings, critical reviews of current textbooks, descriptions of novel programs and descriptions of fieldwork innovations. An essential guide to the changing trends in health care, social services, and education, Occupational Therapy in Health Care provides occupational therapy practitioners with a forum to stay up-to-date on current methods and theories in the field.