Perceived Shortcomings in Rights Implementation in Services for People With Intellectual Disabilities: Professionals' Perspectives and Ethical Implications

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES
Belén G. Bermejo, Vanessa Vega Córdova, Noelia Flores Robaina, Cristina Jenaro
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Abstract

Despite international efforts to implement a rights-based approach in services for individuals with intellectual and developmental disabilities (IDD), concerns about rights violations—both overt and subtle—remain present in everyday practice. This study examines the perceptions of 1134 professionals working in IDD services across 10 Spanish regions regarding the extent to which service users' rights are respected, their needs and preferences are addressed, and the emotional and attitudinal responses of staff. Findings indicate that while most professionals perceived general respect for rights, important concerns were reported regarding specific areas, particularly privacy, social inclusion, and legal recognition. Longer professional tenure was associated with a greater likelihood of reporting perceived shortcomings in rights implementation. Emotional responses such as pity, overprotection, and ambivalence were more frequently reported when professionals worked with individuals with higher support needs. Notably, 27.7% of respondents believed that the right to privacy was not adequately respected, and 38.7% identified lack of attention as a form of inappropriate treatment. These findings highlight the ethical relevance of professional perceptions and organizational practices and underscore the need for ongoing ethical reflection and service-level improvement. Interpreted within the framework of the UN Convention on the Rights of Persons with Disabilities and the Quality of Life Supports Model, the results point to the importance of aligning everyday support practices with person-centered and rights-based principles.

在为智障人士提供的服务中察觉到的权利落实方面的不足:专业人士的观点和伦理意义
尽管国际社会努力在为智力和发育障碍(IDD)患者提供的服务中实施以权利为基础的方法,但在日常实践中,对侵犯权利的担忧——无论是公开的还是微妙的——仍然存在。本研究调查了西班牙10个地区1134名从事IDD服务的专业人员对服务用户权利受到尊重的程度、他们的需求和偏好得到满足的程度以及工作人员的情感和态度反应的看法。调查结果表明,虽然大多数专业人员普遍认为人权得到了尊重,但在某些特定领域,特别是隐私、社会包容和法律承认方面,也存在重要问题。专业任期越长,就越有可能报告在权利执行方面的缺陷。当专业人员与需要更多支持的人一起工作时,诸如怜悯、过度保护和矛盾心理等情绪反应更常被报道。值得注意的是,27.7%的受访者认为隐私权没有得到充分尊重,38.7%的受访者认为缺乏关注是一种不适当的待遇。这些发现突出了专业观念和组织实践的道德相关性,并强调了持续进行道德反思和提高服务水平的必要性。在《联合国残疾人权利公约》和生活质量支持模型的框架下进行解释,结果指出了将日常支持实践与以人为本和以权利为基础的原则相结合的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
4.10
自引率
5.90%
发文量
38
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