A Social Justice Approach to Assistive Technology and Well-Being of People With Visual Disabilities in Low- and Middle-Income Countries: Qualitative Narrative Study.

IF 3.1 Q2 Medicine
Luisa Maria Ortiz-Escobar, Mario Andres Chavarria, Samia Hurst-Majno, Oscar Ivan Campo Salazar, Celia Escobar-Hurtado, Michael Ashley Stein, Minerva Rivas Velarde
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引用次数: 0

Abstract

Background: The United Nations' third Sustainable Development Goal emphasizes ensuring healthy lives and promoting well-being (WB) for all, which requires effective assistive technology (AT) for persons with disabilities. In low- and middle-income countries (LMICs), however, AT remains largely inaccessible, and high abandonment rates indicate that many existing solutions fail to meet users' needs. To improve AT design and effectiveness, a deeper understanding of users' lived experiences and the ways AT influences WB is essential.

Objective: This study aimed to explore how technology creates opportunities or barriers in the daily lives of persons with visual disabilities in LMICs and how it affects their WB.

Methods: We conducted a qualitative narrative study guided by deductive qualitative analysis, using the capability approach (CA) and disadvantage theory (DT) as theoretical frameworks. Nineteen adults with visual disabilities from Cali, Colombia, participated in in-depth, semistructured interviews. A focus group (n=5) deepened the exploration of shared experiences. Data analysis followed three stages: (1) deductive coding using Nussbaum list of central capabilities and key CA constructs (functionings, conversion factors, and agency); (2) recoding through DT concepts (insecure functioning, corrosive disadvantages, and fertile functionings); and (3) inductive analysis to capture emergent sociocultural themes.

Results: AT shaped both opportunities and constraints in participants' lives. While functionings such as employment, mobility, and affiliation were highly valued, they often remained insecure due to systemic barriers. Corrosive disadvantages-such as unemployment, exclusion, and limited spatial autonomy-undermined multiple capabilities simultaneously. Conversely, fertile functionings such as equitable employment, adaptive sports, and access to well-designed AT supported agency and resilience. The inductive analysis revealed 3 interconnected themes: the aspiration to explore and expand movement, the desire to appear attractive, and the adoption of nonconfrontational strategies to maintain social harmony. These findings highlight how emotional, aesthetic, and cultural dimensions shape the experience and meaning of AT.

Conclusions: While AT research in LMICs often emphasizes availability, it rarely addresses how social norms, structural violence, and fear affect meaningful use. The combined CA and DT lens reveals that AT can either enable or constrain WB depending on how it aligns with users' lived contexts. Designing for fertile functionings-those that support agency, safety, and resilience-is essential. Participatory, context-sensitive design must prioritize not only functionality, but also aesthetic dignity, cultural relevance, and emotional security. Including the voices-and silences-of persons with disabilities in the Global South is crucial for transforming AT from a mere tool into a catalyst for real freedom and WB.

辅助技术与低收入和中等收入国家视力障碍者福祉的社会公正途径:定性叙事研究。
背景:联合国第三个可持续发展目标强调确保所有人的健康生活和促进福祉,这就需要为残疾人提供有效的辅助技术。然而,在低收入和中等收入国家(LMICs),自动驾驶技术在很大程度上仍然无法获得,高放弃率表明许多现有解决方案无法满足用户的需求。为了提高AT的设计和有效性,深入了解用户的生活体验以及AT影响WB的方式至关重要。目的:本研究旨在探讨技术如何在中低收入国家的视障人士的日常生活中创造机会或障碍,以及它如何影响他们的WB。方法:以能力理论(CA)和劣势理论(DT)为理论框架,在演绎定性分析的指导下进行定性叙事研究。来自哥伦比亚卡利的19名视力障碍成年人参加了深入的半结构化访谈。焦点小组(n=5)加深了对共享经验的探索。数据分析分为三个阶段:(1)使用Nussbaum核心能力列表和关键CA结构(功能、转换因子和代理)进行演绎编码;(2)通过DT概念(不安全功能、腐蚀性缺点和肥沃功能)进行重新编码;(3)归纳分析捕捉新兴的社会文化主题。结果:AT塑造了参与者生活中的机会和约束。虽然就业、流动性和隶属关系等功能受到高度重视,但由于体制障碍,它们往往仍然不安全。破坏性的缺点——比如失业、排斥和有限的空间自主——同时破坏了多种能力。相反,诸如公平就业、适应性运动和获得精心设计的AT等肥沃功能支持能动性和弹性。归纳分析揭示了3个相互关联的主题:探索和扩大运动的愿望,表现出吸引力的愿望,以及采用非对抗性策略来维持社会和谐。这些发现强调了情感、审美和文化维度是如何塑造AT的体验和意义的。结论:中低收入国家的AT研究往往强调可用性,但很少涉及社会规范、结构性暴力和恐惧如何影响有意义的使用。结合CA和DT镜头显示,AT可以启用或限制WB,这取决于它如何与用户的生活环境保持一致。为肥沃的功能而设计——那些支持能动性、安全性和弹性的功能——是必不可少的。参与式、环境敏感的设计不仅要优先考虑功能,还要考虑审美尊严、文化相关性和情感安全。将全球南方残疾人的声音和沉默纳入其中,对于将AT从单纯的工具转变为真正的自由和世界卫生组织的催化剂至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
4.20
自引率
0.00%
发文量
31
审稿时长
12 weeks
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