Voices of Resilience: Lived Realities and Challenges of Caregivers for Cancer Patients Receiving Palliative Care - A Qualitative Perspective.

Abstract

Objective: The objective of this study was to explore the lived experiences of family caregivers of cancer patients receiving palliative care in a hospice setting.

Materials and methods: A qualitative phenomenological study was conducted among 15 primary caregivers at a hospice in Chandigarh, India. Participants were selected through purposive sampling. Data were collected through in-depth, face-to-face interviews using a pre-validated interview schedule. Colaizzi's seven-step framework was used for data analysis.

Results: The study revealed profound emotional, physical, financial and social challenges experienced by caregivers. Seven major themes emerged: emotional and psychological response to caregiving, physical and lifestyle impact, financial struggles, occupational disruption, spiritual and cultural aspects, social support and barriers and knowledge gaps. These reflect the cumulative burden caregivers carry as they navigate caregiving responsibilities in the end-of-life caregiving context.

Conclusion: Caregivers of cancer patients in palliative care face intense and complex challenges that require acknowledgement and structured support. Integrating caregiver-focused interventions into palliative care is essential for holistic, patient and family-centred care.