Feasibility and Acceptability of the Living My Life Program for Rural and Remote Stroke Survivors

IF 2.1 4区 医学 Q2 NURSING
Sarah M. Jackson, Lucy M. Byrnes, Shaun D. Solomon, Bridee A. Neibling, Louise F. Brown, Ian M. Atkinson, Ruth N. Barker
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引用次数: 0

Abstract

Objective

Determine feasibility and acceptability of the Living My Life Program from the perspective of rural and remote stroke survivors and identify refinements required.

Setting

Queensland, Australia.

Participants

Adults diagnosed with stroke > 6 months prior, living at home, and willing to use videoconferencing technology.

Design

Pragmatic mixed methods multiple case study design, incorporating elements of grounded theory and action research.

Intervention

Twelve-week online program designed to support stroke survivors to recover their way, in their world, using technology.

Main Outcome Measure(s)

Feasibility (Q1-3) and acceptability (Q4) were assessed according to minimum success criteria to answer the following key questions: were stroke survivors able to: (Q1) participate in the Program as intended? (Q2) use technology to participate? (Q3) measure their progress according to what mattered to them? and (Q4) did stroke survivors find the Program acceptable?

Results

Four of 5 participants completed the Program using everyday technologies; one did not complete due to illness. Participants measured their progress using the Patient-Specific Functional Scale, with improvement reported in ≥ 1 goal(s). The Program was highly acceptable (Acceptability of Intervention Measure: median 20/20, range 18–20). Participants felt they could fit the Program into their lives easily, enabling them to drive their recovery and make progress towards what mattered to them. Refinements were incorporated during piloting or noted for future development.

Conclusion

The Living My Life Program was feasible and acceptable from the rural and remote stroke survivors' perspective. The next step is to offer the Program to stroke survivors from diverse cultures and with varying stroke-related impairments and severity to determine its broader applicability.

Trial Registration

ClinicalTrials.gov identifier number: ACTRN12622000967785

“我的生活”计划对农村和偏远地区中风幸存者的可行性和可接受性。
目的:从农村和偏远地区脑卒中幸存者的角度确定“我的生活”项目的可行性和可接受性,并确定需要改进的地方。地理位置:澳大利亚昆士兰。参与者:6个月前被诊断为中风的成年人,住在家里,愿意使用视频会议技术。设计:实用的混合方法多案例研究设计,结合扎根理论和行动研究的元素。干预:一个为期12周的在线项目,旨在帮助中风幸存者利用技术恢复他们的生活方式。主要结果测量:可行性(Q1-3)和可接受性(Q4)根据最低成功标准进行评估,以回答以下关键问题:中风幸存者是否能够:(Q1)按计划参加该计划?(Q2)利用技术参与?(Q3)根据对他们重要的事情来衡量他们的进步?(Q4)中风幸存者是否认为该计划是可以接受的?结果:5名参与者中有4人使用日常技术完成了该计划;一个因病未完成。参与者使用患者特异性功能量表(Patient-Specific Functional Scale)测量他们的进展,报告的改善目标≥1个。该方案是高度可接受的(干预措施的可接受性:中位数20/20,范围18-20)。参与者觉得他们可以很容易地将这个项目融入他们的生活,使他们能够推动自己的康复,并朝着对他们重要的方向前进。在试验期间进行了改进,或为未来的开发做了准备。结论:从农村和偏远地区脑卒中幸存者的角度来看,“我的生活”项目是可行和可接受的。下一步是将该项目提供给来自不同文化背景、有不同中风相关损伤和严重程度的中风幸存者,以确定其更广泛的适用性。试验注册:ClinicalTrials.gov标识号:ACTRN12622000967785。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Australian Journal of Rural Health
Australian Journal of Rural Health 医学-公共卫生、环境卫生与职业卫生
CiteScore
2.30
自引率
16.70%
发文量
122
审稿时长
12 months
期刊介绍: The Australian Journal of Rural Health publishes articles in the field of rural health. It facilitates the formation of interdisciplinary networks, so that rural health professionals can form a cohesive group and work together for the advancement of rural practice, in all health disciplines. The Journal aims to establish a national and international reputation for the quality of its scholarly discourse and its value to rural health professionals. All articles, unless otherwise identified, are peer reviewed by at least two researchers expert in the field of the submitted paper.
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