‘I’m Here, I’m Part of This as Well’: Supporting the Contextualised Needs of Female Partners of Prostate Cancer Survivors Living in Rural/Remote Areas—A Qualitative Study

IF 2.3 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Anna Green, Michelle DiGiacomo, Nicole Heneka, Fiona Crawford-Williams, Jeff Dunn, Suzanne K. Chambers
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Abstract

Female partners of prostate cancer (PCa) survivors are a cohort of cancer carers exposed to social and economic vulnerability. This vulnerability can be compounded by the impact of living in rural/remote areas, yet the experiences of these partners have received little attention and a gender-based approach is needed. We conducted an exploratory qualitative study to examine the experiences of female partners of PCa survivors living in rural/remote areas across Australia and their needs and preferences for support. In-depth interviews were conducted with 17 female partners from 2020 to 2023. Inductive thematic analysis was used to analyse data. Female partners were simultaneously dealing with the accumulated impact on their well-being of the carer role in addition to broader familial and community obligations. Negative interactions with health professionals when engaging local services in the support role were difficult to navigate given a lack of alternative healthcare options. Multiple financial and well-being challenges were associated with travelling away from home in support of their partners seeking treatment. PCa specialist nurses (PCSNs) were integral to supporting female partners, and they also accessed peer support and identified the need for clinician prompting to bolster their personal agency in seeking support for their own well-being. Supporting the well-being of these female partners requires consideration of accumulated life stressors and the realities of living in rural/remote locations. Primary healthcare clinicians and PCSNs are in a unique position to provide contextualised support for these female partners through routine assessment and referral to appropriate support as part of survivorship care.

“我在这里,我也是其中的一部分”:支持生活在农村/偏远地区前列腺癌幸存者女性伴侣的情境化需求-一项定性研究
前列腺癌(PCa)幸存者的女性伴侣是暴露在社会和经济脆弱性中的癌症护理者群体。由于生活在农村/偏远地区,这种脆弱性可能更加严重,但这些伙伴的经验很少受到重视,因此需要采取基于性别的办法。我们进行了一项探索性质的研究,以检查生活在澳大利亚农村/偏远地区的PCa幸存者的女性伴侣的经历以及她们对支持的需求和偏好。从2020年到2023年,对17位女性合伙人进行了深度访谈。采用归纳主题分析法对数据进行分析。女性伴侣除了承担更广泛的家庭和社区义务外,还要同时处理照顾者角色对她们福祉的累积影响。由于缺乏其他医疗保健选择,在让当地服务机构担任支助角色时,很难处理与卫生专业人员的负面互动。为了支持寻求治疗的伴侣,她们离家旅行,在经济和健康方面面临多重挑战。前列腺癌专科护士(PCSNs)是支持女性伴侣不可或缺的一部分,她们还获得同伴支持,并确定需要临床医生的提示,以加强她们为自己的福祉寻求支持的个人代理。支持这些女性伴侣的福祉需要考虑到积累的生活压力因素和农村/偏远地区的生活现实。作为幸存者护理的一部分,初级保健临床医生和pcsn在为这些女性伴侣提供情境支持方面处于独特的地位,可通过常规评估和转介到适当的支持。
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来源期刊
CiteScore
4.50
自引率
8.30%
发文量
423
期刊介绍: Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues
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