Policy and Organizational Factors that Affect the Utilization of Health Services for Alzheimer's Disease Among the Latino Community - The Primary Care Provider Perspective.

Maria Mora Pinzon, Diana Martinez Garcia, Jaime Perales-Puchalt
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Abstract

Background: Latino individuals bear a disproportionate burden of Alzheimer's disease and related dementias (ADRD), with higher risk, underdiagnosis, and limited access to quality care. Primary care providers (PCPs) are crucial for early detection and management. However, organizational and policy factors significantly impact their ability to provide culturally competent and equitable ADRD care for this community. This study explores PCP perspectives on these organizational and policy factors to inform the development of accessible models that improve early diagnosis, preventive care, and quality of life for Latino individuals with ADRD.

Methods: We used thematic analysis to analyze qualitative interviews with 23 diverse PCPs across the United States. We recruited our sample using snowball sampling. We strengthened the validity of our findings by using rigorous data reduction techniques.

Results: Key themes emerged, highlighting the interplay of organizational and policy factors: 1) Insurance eligibility and care options for those uninsured were foremost, with mandated language services facing access and quality challenges that affected the ability of clinicians to perform an accurate diagnosis. 2) Staffing and available resources dictated the type of care offered, leading to inconsistent protocols and options. Providers reported that workup was influenced by their level of training, time availability, and comfort. 3) While recognized as crucial, comprehensive assessments that include evaluation of their home and social environment were limited by appointment constraints and lack of follow-up resources.

Conclusion: Economic and organizational factors, including insurance, costs, staffing models, and resource navigation, shape PCPs' ability to deliver culturally competent and equitable ADRD care. Future interventions should address these barriers by training PCPs in dementia-related diagnostic procedures in Latino communities and developing accessible service models and culturally appropriate diagnostic tools.

影响拉丁裔社区阿尔茨海默病卫生服务利用的政策和组织因素——初级保健提供者的观点。
背景:拉丁裔个体承受着不成比例的阿尔茨海默病和相关痴呆(ADRD)负担,具有更高的风险、诊断不足和获得优质护理的机会有限。初级保健提供者(pcp)对于早期发现和管理至关重要。然而,组织和政策因素显著影响他们为该社区提供具有文化竞争力和公平的ADRD护理的能力。本研究探讨了PCP对这些组织和政策因素的看法,为开发可访问的模型提供信息,以改善拉丁裔ADRD患者的早期诊断、预防保健和生活质量。方法:我们采用专题分析对美国23个不同的pcp进行定性访谈。我们采用滚雪球抽样的方法招募样本。我们通过使用严格的数据简化技术加强了我们发现的有效性。结果:出现了关键主题,突出了组织和政策因素的相互作用:1)对未参保人员的保险资格和护理选择是最重要的,强制性语言服务面临准入和质量挑战,影响了临床医生进行准确诊断的能力。2)人员配备和可用资源决定了所提供的护理类型,导致协议和选择不一致。提供者报告说,他们的训练水平、时间可用性和舒适度影响了检查。3)虽然认识到对儿童家庭和社会环境的综合评估至关重要,但由于任用限制和缺乏后续资源,综合评估受到限制。结论:经济和组织因素,包括保险、成本、人员配备模式和资源导航,影响了pcp提供具有文化竞争力和公平的ADRD护理的能力。未来的干预措施应通过在拉丁裔社区培训pcp掌握与痴呆症相关的诊断程序,并开发可获得的服务模式和适合文化的诊断工具来解决这些障碍。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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