Poemas de investigación: explorando la experiencia de los padres y madres de niños que han fallecido en la unidad de cuidados intensivos pediátricos

IF 1.1 Q4 NURSING

Enfermeria Clinica Pub Date : 2026-03-01 Epub Date: 2025-05-17 DOI:10.1016/j.enfcli.2025.502255

María Teresa González-Gil , Sara Alcón-Nájera , Cristina Oter-Quintana

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引用次数: 0

Abstract

Objective

The purpose of the article is to analyse the use of research poems to capture the essence of the lived experience of families who have lost their children in PICU.

Methods

Qualitative phenomenological study in the PICU of a high complexity hospital. Thirteen interviews were conducted (11 mothers and 9 fathers). Poetic analysis was used at an advanced stage of the analysis process with the intention of refining the theoretical proposal and as a means of generating evidence of a different nature tailored to different audiences.

Results

Six poems are presented. They reflect the main themes of analysis that capture the experience of families who have lost their children in PICU: «Questions», «No good prognosis», «Those little things», «You are saying goodbye», «Life also springs forth» and «Lullaby of the good death». Throughout these are metaphorically condensed pills or phenomenological essences that enlighten us on the experience of: information and communication of bad news, participation in complex decision-making, participation in day-to-day and end-of-life care, facilitation of intimate family spaces and for the family, care of the family system (with special attention to siblings), and accompaniment for the farewell.

Conclusions

The research poems capture the essence of the lived experience as interpreted by the participants to be projected through a medium that amplifies their voice. The poems are a form of presentation of results that mobilises the audience to encourage transformation and change towards excellence in care from a humanising perspective.

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研究诗：探索在儿科重症监护病房死亡儿童的父母的经验

目的分析研究性诗歌的使用，以捕捉在重症监护病房失去孩子的家庭的生活经验的本质。方法对某高复杂性医院PICU进行定性现象学研究。共进行了13次访谈（11名母亲和9名父亲）。诗歌分析被用于分析过程的高级阶段，目的是提炼理论建议，并作为一种为不同受众量身定制不同性质的证据的手段。结果六首诗。它们反映了分析的主题，抓住了在PICU失去孩子的家庭的经历：“问题”、“预后不好”、“那些小事”、“你在说再见”、“生命也在萌芽”和“美好死亡的摇篮曲”。贯穿这些隐喻的浓缩丸或现象学本质，启发我们的经验：坏消息的信息和沟通，参与复杂的决策，参与日常和临终关怀，促进亲密家庭空间和家庭，照顾家庭系统（特别关注兄弟姐妹），以及陪伴告别。研究诗歌捕捉了生活经验的本质，参与者通过一种放大他们声音的媒介来诠释这些本质。这些诗歌是一种结果的呈现形式，动员观众鼓励从人性化的角度向卓越的护理转变和改变。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Enfermeria Clinica NURSING-

CiteScore

2.00

自引率

0.00%

发文量

期刊介绍： Enfermería Clínica is a peer-reviewed scientific journal that is a useful and necessary tool for nursing professionals from the different areas of nursing (healthcare, administration, education and research) as well as for healthcare professionals involved in caring for persons, families and the community. It is the only Spanish nursing journal that mainly publishes original research. The aim of the Journal is to promote increased knowledge through the publication of original research and other studies that may help nursing professionals improve their daily practice. This objective is pursued throughout the different sections that comprise the Journal: Original Articles and Short Original Articles, Special Articles, Patient Care and Letters to the Editor. There is also an Evidence-Based Nursing section that includes comments about original articles of special interest written by experts.