Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis.

Abstract

In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.