Two decades of impact: lessons from the HTAi Patient and Citizen Involvement in HTA Interest Group.

Abstract

Since its establishment in 2005, the HTAi Patient and Citizen Involvement in HTA Interest Group (PCIG) has worked to strengthen health technology assessment (HTA) by systematically incorporating patient and citizen perspectives. Over two decades, PCIG has advanced this goal through multistakeholder projects and collaborations that have produced practical tools, guidance, and methods to support patient involvement in HTA worldwide. Through global knowledge exchange, PCIG has fostered shared learning and capacity building for inclusive, participatory HTA. Its work continues to drive a shift in the mindset of the HTA community - from passive consultation to active partnership with patients and citizens - and encourages investment in robust research to understand patient perspectives. As health systems increasingly aim to reflect lived experiences and community values to improve the implementation and impact of services, PCIG's journey offers a compelling example of the long-term value of collective action, sustained engagement, and meaningful involvement in HTA.