Online Resources on Supported Decision-Making for Irish Adults With Intellectual Disabilities and Their Family and Professional Carers: An Environmental Scan

IF 1.3 4区医学 Q3 EDUCATION, SPECIAL

British Journal of Learning Disabilities Pub Date : 2025-11-18 DOI:10.1111/bld.70022

Hannah Casey, Deirdre Desmond, Laura Coffey

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引用次数: 0

Abstract

Background

This study aimed to determine what information is publicly available online for people with intellectual disabilities in Ireland and their professional and family carers regarding supported decision-making and the recently commenced Assisted Decision-Making (Capacity) Act.

Methods

Potentially eligible online resources identified through a Google search and consultation with relevant experts were reviewed for eligibility using a two-stage screening process. Resources selected for inclusion underwent data extraction and were assessed for quality and accessibility using a modified version of the Patient Education Materials Assessment Tool.

Findings

Of 101 resources identified, 13 were deemed eligible for inclusion. Resources were mostly targeted towards professional carers and rarely focused on the everyday decision-making needs of people with intellectual disabilities. Evaluation of these resources demonstrated poor understandability and accessibility.

Conclusions

The findings indicate a gap in the provision of practical information on supported decision-making and the Assisted Decision-Making (Capacity) Act to people with intellectual disabilities and their decision-making supporters in Ireland, and highlight the need for the codesign of accessible resources to guide the implementation of supported decision-making in more everyday contexts that are tailored to the needs and preferences of this cohort.

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爱尔兰成人智障人士及其家庭和专业护理人员支持决策的在线资源：环境扫描

本研究旨在确定爱尔兰智力残疾者及其专业和家庭照顾者在网上公开获得的关于支持决策和最近开始实施的《辅助决策（能力）法》的信息。方法通过谷歌搜索和咨询相关专家确定潜在的合格在线资源，采用两阶段筛选过程对其资格进行审查。选择纳入的资源进行数据提取，并使用修改版本的患者教育材料评估工具评估其质量和可及性。在确定的101个资源中，有13个被认为符合纳入条件。资源主要针对专业护理人员，很少关注智障人士的日常决策需求。对这些资源的评估表明，其可理解性和可获取性较差。研究结果表明，在向爱尔兰智障人士及其决策支持者提供支持性决策和《辅助决策（能力）法》方面的实际信息方面存在差距，并强调需要共同设计可访问资源，以指导在更多的日常环境中实施针对这一群体的需求和偏好的支持性决策。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.