Feasibility and Acceptability of a Co-Designed Self-Management Programme for People Living With Kidney Failure

IF 2 4区医学 Q3 NURSING

Journal of renal care Pub Date : 2026-02-16 DOI:10.1111/jorc.70051

Laura E. Lunardi, Richard K. Le Leu, Richard Bastin, Paul N. Bennett, Fiona Donnelly, Monique Borlace, Jie Zeng, David Myers, Merrilyn Bradbrook, David Bradbrook, Rhanee Lester, Effie Johns, Anne Britton, Shilpanjali Jesudason, Shyamsundar Muthuramalingam, Dorothea Dumuid, Lisa A. Matricciani

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引用次数: 0

Abstract

Background

Effective self-management is critical in chronic kidney disease, yet many patients report low confidence and engagement in healthcare. Co-designed self-management programmes may strengthen uptake and sustainability, but few have been tested in kidney failure not yet on dialysis populations. This study evaluated the feasibility and acceptability of a self-management programme designed by and for people with chronic kidney disease.

Methods

We conducted a single-arm, pre–post feasibility study in adults with kidney failure (eGFR ≤ 15 mL/min/1.73 m²) not yet on dialysis at an Australian nephrology unit. Patients attending the clinic were invited to participate in a 12-week nurse-led self-management programme, co-designed in partnership with people with kidney disease. The programme included motivational interviewing, structured goal setting, and tailored education delivered via digital or paper format. Feasibility measures included participant recruitment and retention, programme adherence and acceptability, assessed through a post-programme evaluation survey.

Results

Of the 40 patients invited, 31 consented to enrol on the programme (recruitment rate 31/40, 78%). All but one participant completed the follow-up survey (30/31, retention rate 97%), achieving 100% programme adherence among completers. Most participants reported improvements in knowledge, greater confidence in self-management, and valued the nurse support. Participants highlighted the convenience of home-based learning but noted challenges with small-screen readability and requested additional video resources.

Conclusion

A co-designed, nurse-led self-management programme was feasible and highly acceptable for people with kidney failure not yet on dialysis. Findings support further evaluation in a larger controlled trial. Integration of this programme into routine care could strengthen patient readiness for kidney replacement therapy.

Abstract Image

查看原文本刊更多论文

共同设计的肾功能衰竭患者自我管理方案的可行性和可接受性。

背景：有效的自我管理对慢性肾脏疾病至关重要，但许多患者报告对医疗保健缺乏信心和参与。共同设计的自我管理方案可能会加强吸收和可持续性，但很少在尚未进行透析的肾衰竭人群中进行试验。本研究评估了由慢性肾脏疾病患者设计的自我管理方案的可行性和可接受性。方法：我们在澳大利亚肾脏科进行了一项单臂、前后可行性研究，研究对象为肾衰竭（eGFR≤15 mL/min/1.73 m²）的成人，尚未进行透析。到诊所就诊的患者被邀请参加一个为期12周的护士主导的自我管理项目，该项目是与肾病患者合作设计的。该项目包括动机性访谈、结构化目标设定，以及通过数字或纸质形式提供的量身定制教育。可行性措施包括通过方案后评价调查评估的参与者征聘和保留、方案遵守情况和可接受性。结果：在入选的40例患者中，31例同意参加该计划（招募率31/ 40,78 %）。除1名参与者外，所有参与者均完成了随访调查（30/31，保留率97%），完成者的计划依从性达到100%。大多数参与者报告在知识方面有所提高，对自我管理更有信心，并重视护士的支持。与会者强调了家庭学习的便利性，但指出了小屏幕可读性方面的挑战，并要求提供额外的视频资源。结论：一个共同设计的、护士主导的自我管理方案对于尚未透析的肾衰竭患者是可行的，并且是高度可接受的。研究结果支持在更大的对照试验中进一步评估。将该方案纳入常规护理可以加强患者对肾脏替代治疗的准备。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of renal care Nursing-Advanced and Specialized Nursing

CiteScore

3.50

自引率

5.30%

发文量

期刊介绍： The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.