Strengthening the parental role: parents’ experiences of family presence during invasive procedures in pediatric and neonatal intensive care units

IF 5.1 2区医学 Q1 NURSING

Intensive and Critical Care Nursing Pub Date : 2026-04-01 Epub Date: 2025-11-24 DOI:10.1016/j.iccn.2025.104279

Laia Ventura Expósito , Esperanza Zuriguel-Pérez , Jesús Corrionero Alegre , Antonia Arreciado Marañón

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引用次数: 0

Abstract

Introduction

The presence of family members during invasive procedures in neonatal and pediatric intensive care units is limited, despite its emotional benefits. Exploring parents’ experiences in these contexts can help us move toward more family-centered models of care.

Objective

(I) To explore the experiences of parents of pediatric and neonatal patients admitted to intensive care units regarding being present during invasive procedures; (II) Understand the needs, limitations, and suggestions for improvement expressed by parents regarding their presence during invasive procedures.

Methods

Qualitative phenomenological study based on in-depth interviews with parents of pediatric patients admitted to an intensive care unit. The thematic analysis followed the approach of Braun and Clarke, and the COREQ guidelines were respected.

Results

22 parents participated in the study. Two major themes emerged from the analysis: (1) The influence of family presence during invasive procedures, and (2) Parents’ needs. Participants viewed being present as essential to fulfilling their role as caregivers, providing comfort to their children, and strengthening emotional bonds. They endorsed being present, despite the emotional burden entailed. They identified the following key needs: receiving clear information, having emotional support, having the freedom to decide whether to be present, and having a private and safe environment.

Conclusions

Parents view being present during procedures as a right and a way of exercising their parental role. It promotes the emotional well-being of the child and strengthens their relationship with professionals.

Implications for Clinical Practice

The presence of family members should be encouraged through specific training for staff and support personnel. Safe environments must be created, and teams must foster a sensitive approach toward the active role of parents in caregiving.

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强化父母角色：父母在儿科和新生儿重症监护病房侵入性手术期间的家庭存在经验。

在新生儿和儿科重症监护病房的侵入性手术中，家庭成员的存在是有限的，尽管它在情感上有好处。探索父母在这些情况下的经历可以帮助我们走向更加以家庭为中心的护理模式。目的：(1)探讨重症监护病房儿科和新生儿患者家长在有创手术过程中的在场体验；（II）了解家长对其介入侵入性手术的需求、限制和改进建议。方法：质性现象学研究基于深度访谈儿科患者的家长入住重症监护室。主题分析遵循Braun和Clarke的方法，并遵循COREQ指南。结果：22名家长参与了本研究。分析中出现了两个主要主题：(1)侵入性手术过程中家庭在场的影响；(2)父母的需求。参与者认为，作为照顾者、为孩子提供安慰和加强情感纽带，在场是必不可少的。他们同意出席，尽管会带来情感上的负担。他们确定了以下关键需求：获得清晰的信息，有情感支持，有决定是否出席的自由，以及有一个私人和安全的环境。结论：父母认为在手术过程中在场是一种权利，也是行使父母角色的一种方式。它促进了孩子的情感健康，并加强了他们与专业人士的关系。对临床实践的启示：应通过对工作人员和辅助人员的专门培训，鼓励家庭成员在场。必须创造安全的环境，团队必须培养一种敏感的方法，让父母在照顾中发挥积极作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Intensive and Critical Care Nursing NURSING-

CiteScore

6.30

自引率

15.10%

发文量

144

审稿时长

57 days

期刊介绍： The aims of Intensive and Critical Care Nursing are to promote excellence of care of critically ill patients by specialist nurses and their professional colleagues; to provide an international and interdisciplinary forum for the publication, dissemination and exchange of research findings, experience and ideas; to develop and enhance the knowledge, skills, attitudes and creative thinking essential to good critical care nursing practice. The journal publishes reviews, updates and feature articles in addition to original papers and significant preliminary communications. Articles may deal with any part of practice including relevant clinical, research, educational, psychological and technological aspects.