Caregivers at the crossroads: shifting policies and the challenges faced by employed caregivers.

Abstract

Introduction: Family caregiving is receiving increased attention in state and national policy, while caregivers face constrictions in workplace flexibility.

Methods: A survey of employed caregivers in Utah (n = 226) was used to assess how often they reported having trouble managing paid work and caregiving responsibilities, the challenges they encountered in finding balance between roles, and effective strategies for caregivers to manage both roles.

Results: Almost half (44%) experienced moderate to severe difficulties balancing paid work and caregiving. Based on open-ended responses, time burden was the most commonly difficult aspect of balancing. Caregivers who had difficulty managing caregiving and work were twice as likely to have made employment changes, including hybrid/remote work or reducing hours. Caregivers said flexibility in work schedule and help with caregiving from family and friends were important to helping them achieving balance.

Conclusion: Difficulties balancing caregiving with paid employment are common and span health, financial, and time challenges. Policies supporting caregivers in their dual roles should address the common difficulties that caregivers experience. These policies could benefit employers, workers, and people with chronic health conditions and disability.