Mia Pattillo, Jeffers Guthrie, Molly Nowels, Maureen Ekwebelem, Karolina Sadowska, Milagros Silva, M Carrington Reid, Daniel Shalev
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引用次数: 0
Abstract
Background: Palliative care aims to improve quality of life for individuals with serious illness, yet mental health needs in this population often remain under-addressed. Currently, little is known about how patients and caregivers perceive the role of mental health services within palliative care.
Objectives: To explore patient and caregiver perspectives on (1) current delivery of mental health support in palliative care for serious medical illnesses and (2) preferences for integrated specialty mental health services.
Methods: We conducted semi-structured interviews with 23 patients receiving ambulatory palliative care and 11 caregivers at an academic medical center. Interviews explored experiences with mental health care, perceived roles of palliative care, and preferences for integration. Transcripts were analyzed using thematic analysis.
Results: Participants described strong therapeutic relationships with palliative care clinicians, who offered informal mental health support through conversations, medication management, and referrals. However, many were uncertain whether mental health care formally fell within providers' roles. Both patients and caregivers expressed broad support for integrated mental health services, citing benefits such as improved care coordination, streamlined logistics, and access to clinicians with knowledge about serious illness. Caregivers emphasized their own emotional burdens and advocated for inclusion as recipients of mental health support.
Conclusions: Patients and caregivers view integrated mental healthcare as a valuable addition to palliative care. Integration models should include specialist mental health providers, address caregiver needs, and offer flexible delivery formats. Palliative care's transdiagnostic scope, interdisciplinary structure, and psychosocial orientation make it a strategic site for integrated care.
期刊介绍：
The Journal of Pain and Symptom Management is an internationally respected, peer-reviewed journal and serves an interdisciplinary audience of professionals by providing a forum for the publication of the latest clinical research and best practices related to the relief of illness burden among patients afflicted with serious or life-threatening illness.
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