A good autistic life: an autistic-led conceptualization of autistic flourishing through autistic women's-lived experiences.

IF 2.2 Q2 SOCIOLOGY
Frontiers in Sociology Pub Date : 2025-09-24 eCollection Date: 2025-01-01 DOI:10.3389/fsoc.2025.1611803
Åsa Hedlund, Maria Eriksson Wester, Pia Edenvik, Cecilia Ingard, Kajsa Isakson, Lisa Kron Sabel, Danielle Unéus, Therese Lindström, Melissa H Black, Hanna Bertilsdotter Rosqvist
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Abstract

Introduction and objective: Interest in developing an understanding of "autistic flourishing" is steadily increasing in research and autistic communities. Flourishing is a multidimensional construct explained somewhat by positive emotion, but mostly by good psychological and social functioning. Autistic people process information and stimuli differently from neurotypical people, so it may be reasonable to assume that their definition of flourishing and the factors that influence it may differ from those of neurotypical people. Exploring flourishing from autistic women's perspectives is essential, as they have been historically overlooked in autism research, despite differing from autistic men in presentation and facing higher mental health risks.

Methods: This autistic-led, partly collective, autoethnographic study was conducted within the context of a broader project exploring the concept of autistic flourishing. Here, we employ a two-phased phenomenological approach, drawing on both autistic and neurotypical frames of analyses. In the first phase, autistic women draw on their lived experiences in a collective autoethnography, including both focus groups and collective writing, to shape the concept of flourishing and its indicators. These insights were further developed by neurotypical authors, who compare to neurotypical experiences and conceptualizations of flourishing.

Results: Two themes and twelve subthemes were identified. The first theme, "Living with a neurodivergent bodymind," presents how autistic women define and experience flourishing. The second theme, "Strategies for autistic flourishing," highlights actions autistic women take to achieve or maintain flourishing.

Discussion and conclusion: Through our autistic-led approach drawing on neurodiverse frames of analysis, our work presents a first initial investigation of autistic flourishing among women. Our findings suggest qualitative differences in autistic derived definitions of flourishing and its indicators compared to those of neurotypicals, emphasizing the importance of developing an autistic-driven understanding of flourishing.

美好的自闭生活:通过自闭女性的生活经历,以自闭为主导的自闭繁荣的概念化。
前言和目的:在研究和自闭症社区中,对发展“自闭症繁荣”的理解的兴趣正在稳步增长。繁荣是一个多维结构,在某种程度上可以用积极情绪来解释,但主要是通过良好的心理和社会功能来解释。自闭症患者处理信息和刺激的方式与正常人不同,因此我们可以合理地假设,他们对繁荣的定义以及影响繁荣的因素可能与正常人不同。从自闭症女性的角度探索繁荣是至关重要的,因为她们在自闭症研究中一直被忽视,尽管她们在表现上与自闭症男性不同,而且面临着更高的心理健康风险。方法:这项由自闭症患者主导的,部分是集体的,自我民族志研究是在一个更广泛的项目探索自闭症繁荣概念的背景下进行的。在这里,我们采用两阶段现象学方法,利用自闭症和神经典型的分析框架。在第一阶段,自闭症妇女将她们的生活经历写进集体的自我民族志中,包括焦点小组和集体写作,以塑造繁荣的概念及其指标。这些见解被神经典型的作者进一步发展,他们比较了神经典型的经验和繁荣的概念。结果:确定了2个主题和12个副主题。第一个主题是“与神经发散的身心一起生活”,展示了自闭症女性如何定义和体验繁荣。第二个主题是“自闭繁荣战略”,重点介绍自闭妇女为实现或维持繁荣所采取的行动。讨论和结论:通过我们以自闭症为主导的方法,利用神经多样性的分析框架,我们的工作首次初步调查了女性中自闭症的发展。我们的研究结果表明,与神经正常者相比,自闭症衍生的繁荣定义及其指标存在质的差异,强调了发展自闭症驱动的繁荣理解的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Frontiers in Sociology
Frontiers in Sociology Social Sciences-Social Sciences (all)
CiteScore
3.40
自引率
4.00%
发文量
198
审稿时长
14 weeks
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