Telepalliation creates a sense of security: A qualitative study of patients with cancer receiving palliative care.

Abstract

Background: With the aging population and increasing prevalence of chronic illnesses, the demand for palliative care is rising. However, only a small percentage of patients in need receive palliative care. Many prefer home-based care, valuing continuous support and communication from healthcare professionals. Telepalliative care, utilizing telehealth technology, may enhance home-based palliative care by improving access to professionals, facilitating communication, and offering a cost-effective approach.

Aim: The aim of this study was to explore patients' experiences with the functionality of the Telepalliation program while receiving specialized palliative care.

Design: Qualitative sub-study within the multimethod randomized control trial (RCT) on the Telepal platform (ClinicalTrials.gov: NCT04995848) using semi-structured individual interviews inspired by Brinkmann & Kvale. Data was thematically coded using NVIVO 12.0 software.

Setting/participants: The study was conducted at the University Hospital of Southern Denmark. Eighteen were randomly selected for interviews. Eligible patients were over 18, receiving specialized palliative care, and diagnosed with cancer, terminal heart failure, chronic obstructive pulmonary disease, or motor neuron disease.

Results: Four key themes emerged: "Sense of coherence," "Telepal platform," "Roles of spouse/partner and relatives," and "Cross-sector collaboration." The program improved patients' sense of security and coherence by enhancing communication with healthcare professionals. Some challenges arose due to fatigue and questionnaire volume. The platform also successfully integrated relatives into the care process.

Conclusions: The Telepal program enhanced communication, continuity, and personalized care, improving the sense of security for patients and families, though some patients faced challenges with fatigue and questionnaire burden.