Remote and rural communities face inequalities in access to specialist palliative care, could telemedicine enhance care? A qualitative study of patient, carer and healthcare professionals' experiences of video consultation.

IF 2.2 Q2 HEALTH CARE SCIENCES & SERVICES
Palliative Care and Social Practice Pub Date : 2025-09-30 eCollection Date: 2025-01-01 DOI:10.1177/26323524251380632
Lorelle Dismore, Katherine Frew, Donna Wakefield, Charlotte Bryan, Katherine Swainston
{"title":"Remote and rural communities face inequalities in access to specialist palliative care, could telemedicine enhance care? A qualitative study of patient, carer and healthcare professionals' experiences of video consultation.","authors":"Lorelle Dismore, Katherine Frew, Donna Wakefield, Charlotte Bryan, Katherine Swainston","doi":"10.1177/26323524251380632","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Living in remote and rural areas is associated with worse health outcomes and poorer end-of-life care. Inequality in access to high-quality palliative care due to rurality is a worldwide problem. There is a need to evaluate potential ways, such as using telemedicine, to enhance palliative care and support patients to remain within their communities.</p><p><strong>Objective: </strong>To understand the experiences of patients, carers and specialist palliative care professionals to receive/deliver video consultations in a rural setting.</p><p><strong>Design: </strong>Qualitative semi-structured interviews with reflective thematic analysis.</p><p><strong>Methods: </strong>Patients, their informal carers (family/friend) and members of the community specialist palliative care team were invited to qualitative interview to explore their experience of using video consultations.</p><p><strong>Results: </strong>Four themes were generated including: (1) interpersonal communication, (2) enhanced provision with subthemes: physical distance and reducing travel and quick and convenient access to care, (3) flexible blended models of care and (4) organisational and practical barriers.</p><p><strong>Conclusion: </strong>In many situations, video consultations were felt to be beneficial to enable convenient and reliable access to specialist palliative care for patients living remotely. They are feasible, acceptable and practical for patients, their families and healthcare professionals. However, video consultations must be offered as an option to enhance care rather than replace in-person home visits, which are required in some situations. Further research is needed to explore how to ensure this increased accessibility is inclusive and supports disadvantaged older patients and those of lower socio-economic position.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251380632"},"PeriodicalIF":2.2000,"publicationDate":"2025-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12489204/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Palliative Care and Social Practice","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/26323524251380632","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

Abstract

Background: Living in remote and rural areas is associated with worse health outcomes and poorer end-of-life care. Inequality in access to high-quality palliative care due to rurality is a worldwide problem. There is a need to evaluate potential ways, such as using telemedicine, to enhance palliative care and support patients to remain within their communities.

Objective: To understand the experiences of patients, carers and specialist palliative care professionals to receive/deliver video consultations in a rural setting.

Design: Qualitative semi-structured interviews with reflective thematic analysis.

Methods: Patients, their informal carers (family/friend) and members of the community specialist palliative care team were invited to qualitative interview to explore their experience of using video consultations.

Results: Four themes were generated including: (1) interpersonal communication, (2) enhanced provision with subthemes: physical distance and reducing travel and quick and convenient access to care, (3) flexible blended models of care and (4) organisational and practical barriers.

Conclusion: In many situations, video consultations were felt to be beneficial to enable convenient and reliable access to specialist palliative care for patients living remotely. They are feasible, acceptable and practical for patients, their families and healthcare professionals. However, video consultations must be offered as an option to enhance care rather than replace in-person home visits, which are required in some situations. Further research is needed to explore how to ensure this increased accessibility is inclusive and supports disadvantaged older patients and those of lower socio-economic position.

Abstract Image

Abstract Image

Abstract Image

偏远和农村社区在获得专业姑息治疗方面面临不平等,远程医疗能否加强护理?对患者、护理人员和医疗保健专业人员视频咨询体验的定性研究。
背景:生活在偏远和农村地区与较差的健康结果和较差的临终关怀有关。由于农村原因,在获得高质量姑息治疗方面存在不平等,这是一个全球性问题。有必要评估可能的方法,例如使用远程医疗,以加强姑息治疗并支持患者留在社区内。目的:了解农村地区患者、护理人员和专科姑息治疗专业人员接受/提供视频会诊的经验。设计:带有反思性主题分析的定性半结构化访谈。方法:采用质性访谈法对患者及其非正式照护者(家人/朋友)和社区专科姑息治疗团队成员进行访谈,探讨他们使用视频会诊的经验。结果:产生了四个主题,包括:(1)人际沟通;(2)加强提供子主题:物理距离和减少旅行以及快速方便地获得护理;(3)灵活的混合护理模式;(4)组织和实践障碍。结论:在许多情况下,视频会诊被认为有利于使远程生活的患者方便可靠地获得专科姑息治疗。对于患者、家属和医疗保健专业人员来说,它们是可行的、可接受的和实用的。但是,必须提供视像咨询,作为加强护理的一种选择,而不是取代在某些情况下需要的亲自家访。需要进一步的研究来探索如何确保这种增加的可及性是包容性的,并支持处境不利的老年患者和社会经济地位较低的患者。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Palliative Care and Social Practice
Palliative Care and Social Practice Nursing-Advanced and Specialized Nursing
CiteScore
2.90
自引率
0.00%
发文量
37
审稿时长
9 weeks
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信