In the Field: Visiting Peer Institutions to Inform Pediatric Palliative Care Program Re-Development.

IF 3.5 2区医学 Q2 CLINICAL NEUROLOGY

Journal of pain and symptom management Pub Date : 2025-10-01 DOI:10.1016/j.jpainsymman.2025.09.012

Ross W Cleveland, Chelsea Heneghan, Suzanne Gouda, Shih-Ning Liaw, Terrance Murphy, Vanessa Battista, Eleanor Frechette, Carlie Larocque, Abby R Rosenberg

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引用次数: 0

Abstract

Context: The heterogeneity of Pediatric Palliative Care (PPC) programs presents challenges in forming a generalized model for growth. We developed and implemented a system to visit and learn from peer institutions to inform our own program's revision and expansion.

Objectives: To describe the use of structured field trips to peer programs in North America to inform program development.

Methods: OUR PROCEDURE INVOLVED THREE STEPS: First, "organization" included choosing visit sites, outreach and collaboration to plan logistics, development of a standardized approach, and creating inter-disciplinary field trip teams to ensure diverse PPC perspectives during each visit. Second, "conduction" included the field trips, creating a semi-structured debriefing interview guide aimed at uncovering common tensions, and performing interviews with those who went on each trip. Third, "application" involved analyzing interview data to identify and name key tensions, sharing those tension points with the team, and centering those points in a clinical model re-design.

Results: We completed 7 field trips, including 16 interdisciplinary members of our team. Analysis of our debriefing interviews yielded 2 primary and 5 sub-themes/tension points. Focusing on recognizing, accepting, mitigating, or eliminating those tension points during a clinical model re-design led to the creation of several formative changes to our team structure. The field trips took 8 months from beginning to delivery of a new clinical model.

Conclusions: Field trips to peer PPC teams highlight both shared and unique strengths and challenges PPC teams experience. Knowledge gained from trips may enable creative and informed guidance of PPC programmatic growth and evolution.

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实地考察：访问同行机构为儿科姑息治疗项目的再开发提供信息。

背景：儿科姑息治疗（PPC）项目的异质性在形成一个广义的增长模型方面提出了挑战。我们开发并实施了一个访问和向同行机构学习的系统，为我们自己的项目的修订和扩展提供信息。目的：描述对北美同行项目进行有组织的实地考察，为项目发展提供信息。方法：我们的程序包括三个步骤：首先，“组织”包括选择访问地点，外联和合作计划后勤，制定标准化方法，以及创建跨学科的实地考察团队，以确保每次访问期间不同的PPC观点。其次，“传导”包括实地考察，创建一份半结构化的述职采访指南，旨在揭示常见的紧张关系，并对每次旅行的参与者进行采访。第三，“应用”包括分析访谈数据，以识别和命名关键紧张点，与团队分享这些紧张点，并将这些紧张点集中在临床模型重新设计中。结果：我们完成了7次实地考察，其中包括我们团队的16名跨学科成员。我们对汇报采访的分析得出了2个主要主题和5个次要主题/紧张点。在临床模型重新设计期间，专注于识别、接受、减轻或消除这些紧张点，导致了我们团队结构的几个形成性变化。从开始到交付新的临床模型，实地考察耗时8个月。结论：对同行PPC团队的实地考察突出了PPC团队共同的和独特的优势和挑战。从旅行中获得的知识可以为PPC项目的发展和演变提供创造性和明智的指导。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of pain and symptom management 医学-临床神经学

CiteScore

8.90

自引率

6.40%

发文量

821

审稿时长

26 days

期刊介绍： The Journal of Pain and Symptom Management is an internationally respected, peer-reviewed journal and serves an interdisciplinary audience of professionals by providing a forum for the publication of the latest clinical research and best practices related to the relief of illness burden among patients afflicted with serious or life-threatening illness.