Survivors of Oncological Disease: Experience and Satisfaction with National Health Care and Service.

Abstract

Background/Objectives: The relationship between patients, health professionals, and healthcare organizations is a key factor in patient satisfaction and adherence to care. Organizations, professionals, and patients would benefit from the implementation of organizational measures to promote health literacy and post-discharge psychological counseling. This study aims to explore cancer survivors' experiences and satisfaction with care, along with identifying their primary needs and barriers. Methods: This is a cross-sectional, mixed study with a random and representative sample of the three Portuguese Institutes of Oncology. The patient sample consists of 768 participants, 463 of whom are female (60.3%), aged between 18 and 68 years. Results: Most patients reported a positive healthcare experience, particularly regarding staff attention and clarification of doubts, comfort, and ease of access. However, less positive aspects included long waiting times, limited involvement in decision-making, and difficulties understanding medical information. No significant differences were found by gender or age. Overall satisfaction was influenced by the patient's health status, with those in better health reporting more favorable experiences. Conclusions: Patients shared suggestions and complaints about healthcare organization functioning, especially regarding long waiting lists and inadequate conditions during prolonged hospital stays. Overall, their view of the National Health System, particularly Primary Health Care, was less positive compared to the satisfaction with the health organizations under study. This study highlights the importance of follow-up for cancer survivors, with many patients valuing post-discharge contact as a space to share experiences and challenges. The psychological monitoring of patients and families surviving cancer should be clinical practice in health organizations.