Leonard A. Valentino , Maria E. Santaella , Michelle L. Witkop , Raymond W. Stanhope , Sammie Valadez , Samantha A. Carlson , Halli Benasutti , Donna DiMichele , Michael Recht
{"title":"The Bleeding Disorders Research Collaborative","authors":"Leonard A. Valentino , Maria E. Santaella , Michelle L. Witkop , Raymond W. Stanhope , Sammie Valadez , Samantha A. Carlson , Halli Benasutti , Donna DiMichele , Michael Recht","doi":"10.1016/j.bvth.2025.100099","DOIUrl":null,"url":null,"abstract":"<div><h3>Abstract</h3><div>The Bleeding Disorders Research Collaborative (BDRC) aims to advance an accessible standard of care and quality of life for all people living with inheritable bleeding disorders. This goal will be achieved through collaborative and meaningful scientific inquiry, coordinated by an efficient research infrastructure, and undertaken by a diverse, capacitated workforce in partnership with an engaged community. The BDRC is supported by facilitative research policy and grounded in the principles of health equity, diversity, inclusion, accessibility, and belonging, striving for dignity, safety, well-being, and opportunities, leading to health justice. Importantly, the initiative is fully informed by lived experience experts, people affected by inheritable bleeding disorders, who are key members in the research development, implementation, and dissemination team.</div></div>","PeriodicalId":100190,"journal":{"name":"Blood Vessels, Thrombosis & Hemostasis","volume":"2 4","pages":"Article 100099"},"PeriodicalIF":0.0000,"publicationDate":"2025-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Blood Vessels, Thrombosis & Hemostasis","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2950327225000567","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
The Bleeding Disorders Research Collaborative (BDRC) aims to advance an accessible standard of care and quality of life for all people living with inheritable bleeding disorders. This goal will be achieved through collaborative and meaningful scientific inquiry, coordinated by an efficient research infrastructure, and undertaken by a diverse, capacitated workforce in partnership with an engaged community. The BDRC is supported by facilitative research policy and grounded in the principles of health equity, diversity, inclusion, accessibility, and belonging, striving for dignity, safety, well-being, and opportunities, leading to health justice. Importantly, the initiative is fully informed by lived experience experts, people affected by inheritable bleeding disorders, who are key members in the research development, implementation, and dissemination team.
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