Optimizing Self-Management for People Living With Chronic Diabetic Foot Ulcers: A Longitudinal Qualitative Study.

IF 1.8
Shupeng Shi, Yijin Xu, Yongjie Li, Xingzhou Liu, Chuan Yang
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Abstract

Purpose: The aim of this study was to identify facilitators and barriers in dynamic self-management in order to optimize individualized strategies of persons with diabetic foot ulcers (DFUs).

Design: Longitudinal qualitative research design.

Participants and setting: The sample comprised 18 participants diagnosed with a DFU and 10 family caregivers; respondents were recruited from Sun Yat-sen Memorial Hospital, a metropolitan tertiary center with a diabetic foot multidisciplinary care team located in Guangzhou, China.

Methods: Semi-structured interviews were constructed guided by self- and family-management (SFM) framework. Interviews occurred around 1, 3, and 6 months after DFU diagnosis. Data were analyzed using thematic analysis. Data collection was conducted between September 2023 and June 2024.

Results: Eleven subthemes were identified as either facilitators or barriers and were categorized according to the 3 stages of DFU-SFM. They were (1) SFM buildup: motivation and determination, support network at its peak, information overload and uncertainty; (2) SFM adaption: activating more resources, establishing a virtuous cycle, waning support network and accumulation of negative experiences; and (3) SFM optimization: test the boundaries, reflection and personalization and living with DFU.

Conclusions: We identified strategies to optimize DFU self-management that occurred in in stages. We hypothesize that providing earlier structured education that incorporates skills start SFM, a holistic approach that goes beyond wound care to maintain SFM, and enhancing self-monitoring and external supervision to optimize SFM.

优化慢性糖尿病足溃疡患者的自我管理:一项纵向定性研究
目的:本研究的目的是确定动态自我管理的促进因素和障碍,以优化糖尿病足溃疡(DFUs)患者的个性化策略。设计:纵向定性研究设计。参与者和环境:样本包括18名诊断为DFU的参与者和10名家庭照顾者;受访者来自位于中国广州的中山纪念医院,该医院是一家拥有糖尿病足多学科护理团队的大都市三级中心。方法:采用自我与家庭管理(SFM)框架进行半结构化访谈。在诊断DFU后1、3和6个月进行访谈。数据采用专题分析进行分析。数据收集于2023年9月至2024年6月进行。结果:11个子主题被确定为促进因素或障碍,并根据DFU-SFM的3个阶段进行分类。它们是:(1)SFM的建立:动机和决心、支持网络达到顶峰、信息过载和不确定性;(2) SFM适应:激活更多资源,建立良性循环,支持网络减弱,负面经验积累;(3) SFM优化:测试边界、反思和个性化以及与DFU共存。结论:我们确定了分阶段优化DFU自我管理的策略。我们假设提供早期的结构化教育,包括技能启动SFM,一种超越伤口护理的整体方法来维持SFM,加强自我监测和外部监督来优化SFM。
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