Surveying patients’ experiences and perspectives on venous thromboembolism: gaps and opportunities in health delivery

Blood Vessels, Thrombosis & Hemostasis Pub Date : 2025-06-16 DOI:10.1016/j.bvth.2025.100081

Anjlee Mahajan , Anya Parekh , Laura E. Dodge , Antonia Chan , Alexander Cermak , Cilomar Martins de Oliveira Filho , Ang Li , Anna L. Parks , Jordan K. Schaefer , Alejandra Gutierrez Bernal , Leben Tefera , Shruti Chaturvedi , Jori E. May , Leslie Lake , Dana E. Angelini , Rushad Patell

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Abstract

Patient experience is an independent dimension of health care delivery. We aimed to capture patients’ experiences with venous thromboembolism (VTE) to improve health care delivery. A survey was developed by a multidisciplinary team of clinicians and patient advocates. Domains included patient demographics, health care experiences, perspectives, and potential gaps in health care received for VTE. The survey was distributed electronically between May and July 2023 through a patient advocacy group targeting individuals with a personal VTE history. The primary outcome was a binary indicator of patient satisfaction with how their VTE diagnosis was explained. Logistic regression was used to assess factors associated with satisfaction. Of 1050 participants, the majority were from the United States (81%). Most respondents were female (81%) and White (88%), and 71% were aged between 40 and 69 years. Satisfaction with clinician explanation of VTE diagnosis was reported in 55% of participants. The likelihood of satisfaction increased as the time spent with a clinician at diagnosis increased (relative to <5 minutes, risk ratio (RR) of 1.65 [95% confidence interval [CI], 1.36-2.02] for 6-10 minutes to RR of 2.44 [95% CI 1.92-3.10] for 31-60 minutes). Factors associated with decreased likelihood of satisfaction included multiple visits to obtain VTE diagnosis (RR, 0.68; 95% CI, 0.59-0.79) and not being given information at the time of diagnosis (RR, 0.69; 95% CI, 0.61-0.79). From this large international survey designed to capture patient experiences and gaps in VTE care delivery, we identified several areas for improvement. Specifically, enhancing patient education and spending more time with patients at diagnosis are opportunities to improve patient satisfaction with VTE care.

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调查患者对静脉血栓栓塞的经验和观点：卫生服务的差距和机会

摘要患者体验是医疗服务的一个独立维度。我们的目的是捕捉患者的经验与静脉血栓栓塞（VTE），以改善卫生保健服务。一项调查是由临床医生和患者倡导者组成的多学科团队开展的。领域包括患者人口统计、医疗保健经验、观点和VTE接受医疗保健的潜在差距。该调查于2023年5月至7月通过患者倡导组织以具有静脉血栓栓塞病史的个人为目标进行电子分发。主要结果是患者对静脉血栓栓塞诊断解释的满意度的二元指标。采用Logistic回归评估与满意度相关的因素。在1050名参与者中，大多数来自美国（81%）。大多数受访者是女性（81%）和白人（88%），71%的人年龄在40至69岁之间。55%的参与者对临床医生对静脉血栓栓塞诊断的解释表示满意。满意度的可能性随着诊断时与临床医生在一起的时间的增加而增加（相对于5分钟，6-10分钟的风险比（RR）为1.65[95%可信区间[CI]， 1.36-2.02]， 31-60分钟的风险比（RR）为2.44[95%可信区间[CI]， 1.92-3.10]）。与满意度降低相关的因素包括多次就诊以获得静脉血栓栓塞诊断（RR, 0.68; 95% CI, 0.59-0.79）和在诊断时未被告知信息（RR, 0.69; 95% CI, 0.61-0.79）。这项大型国际调查旨在了解患者在静脉血栓栓塞治疗方面的经验和差距，我们确定了几个需要改进的领域。具体来说，加强患者教育和在诊断时花更多的时间与患者在一起是提高患者对静脉血栓栓塞治疗满意度的机会。

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Blood Vessels, Thrombosis & Hemostasis

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