Ageing-in-place care preferences of persons living with dementia and informal caregivers with a migration background: A qualitative interview study.

IF 2.2 3区社会学 Q2 GERONTOLOGY

Ageing & Society Pub Date : 2025-07-30 DOI:10.1017/S0144686X25100111

Isabelle Vullings, Soukaina El Jaouhari, Joost Wammes, Carolien Smits, Nanon Labrie, Beyza Aydin-Misirci, Özgül Uysal-Bozkir, Esther de Bekker-Grob, Janet L MacNeil Vroomen

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Abstract

Ageing-in-place for persons with dementia and informal caregivers is encouraged by governments and society. However, individuals with non-Western migration backgrounds are at higher risk of dementia yet underrepresented in research and care. This study aims to identify ageing-in-place care preferences of persons with dementia and their informal caregivers in the Netherlands. Semi-structured interviews (n=8 participants with dementia, n=20 informal caregivers) were analyzed using reflexive thematic analysis. Findings reveal that informal caregivers feel a strong duty to care, assisting with various daily tasks. While they desire shared care with professionals, identifying concrete care needs is challenging, highlighting the need for proactive professional support. Participants also emphasized the importance of culturally sensitive in-home care, home adaptations, social care, and accessible dementia information. Additionally, the emotional impact of dementia on care recipients and caregivers underscores the need for emotional support. These insights enhance understanding of the care preferences of persons with dementia and their informal caregivers, aiding more efficient and culturally responsive health service planning.

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老年痴呆患者和具有移民背景的非正式照护者的养老护理偏好：一项定性访谈研究。

政府和社会鼓励痴呆症患者和非正式照护者就地养老。然而，具有非西方移民背景的个体患痴呆症的风险更高，但在研究和护理中代表性不足。本研究旨在确定荷兰痴呆症患者及其非正式护理人员的老年护理偏好。半结构化访谈（n=8名痴呆患者，n=20名非正式护理人员）采用自反性主题分析进行分析。调查结果显示，非正式照顾者感到有很强的照顾责任，协助完成各种日常任务。虽然他们希望与专业人士分享护理，但确定具体的护理需求是具有挑战性的，这突出了积极主动的专业支持的必要性。参与者还强调了文化敏感的家庭护理、家庭适应、社会护理和可获得的痴呆症信息的重要性。此外，痴呆症对护理接受者和照顾者的情感影响强调了对情感支持的需求。这些见解增进了对痴呆症患者及其非正式照护者的护理偏好的了解，有助于更有效和更符合文化的卫生服务规划。

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来源期刊

Ageing & Society GERONTOLOGY-

CiteScore

6.30

自引率

8.00%

发文量

144

期刊介绍： Ageing & Society is an interdisciplinary and international journal devoted to the understanding of human ageing and the circumstances of older people in their social and cultural contexts. It draws contributions and has readers from many disciplines including gerontology, sociology, demography, psychology, economics, medicine, social policy and the humanities. Ageing & Society promotes high-quality original research which is relevant to an international audience to encourage the exchange of ideas across the broad audience of multidisciplinary academics and practitioners working in the field of ageing.