Mohammed Elmadani, Klara Simon, Mohammed Mustafa, Godfrey Mbaabu Limungi, Evans Kasmai Kiptulon, Maha Besbes, Amer Mesmar, Osama Hamad, Eva Horvath, Lívia Tóth, Orsolya Mate
{"title":"Ethical dimensions in nursing care for individuals with intellectual disabilities.","authors":"Mohammed Elmadani, Klara Simon, Mohammed Mustafa, Godfrey Mbaabu Limungi, Evans Kasmai Kiptulon, Maha Besbes, Amer Mesmar, Osama Hamad, Eva Horvath, Lívia Tóth, Orsolya Mate","doi":"10.1177/09697330251366607","DOIUrl":null,"url":null,"abstract":"<p><p>BackgroundIndividuals with intellectual and developmental disabilities (IDD) face significant health disparities, often exacerbated by ethical and legal complexities in nursing care. Nurses are frequently challenged to balance autonomy, informed consent, patient safety, and human rights, especially in settings with unclear guidelines or insufficient training. This narrative review explores the ethical and legal considerations in nursing care for individuals with IDD, aiming to highlight challenges and propose best practices.MethodsA narrative review methodology was employed to synthesise evidence from qualitative, quantitative, mixed-methods studies, theoretical articles, and grey literature. A comprehensive search was conducted across PubMed, EBSCO, Embase, Scopus, and Web of Science, using keywords related to ethical issues, legal rights, nursing, and intellectual disability. Studies were included if they addressed the ethical or legal dimensions of nursing care for people with IDD. Data were synthesised narratively and visually mapped using conceptual mapping techniques. Quality was assessed using the SANRA scale.ResultsEighteen studies met the inclusion criteria. The findings reveal ethical tensions in obtaining informed consent, maintaining autonomy, and ensuring dignity against communication barriers and behavioural challenges. Nurses reported experiencing an emotional burden and ethical uncertainty when institutional constraints limit person-centred care. The overuse of restrictive practices and limited access to tailored healthcare were recurrent concerns. Legal challenges included complexities in guardianship, consent to treatment, and discriminatory practices. Emerging issues, such as the ethical use of artificial intelligence in care planning, were also noted.ConclusionNursing care for individuals with IDD requires ethically grounded, legally informed, and person-centred approaches. Best practices include accessible communication, interdisciplinary collaboration, tailored education, and advocacy. Nurses must receive support through training and organisational frameworks to navigate complex ethical decisions and uphold the dignity and rights of individuals with IDD. These findings have direct implications for nursing practice and policy, offering actionable guidance to improve ethical decision-making, communication, and inclusive care delivery for individuals with intellectual disabilities.</p>","PeriodicalId":49729,"journal":{"name":"Nursing Ethics","volume":" ","pages":"9697330251366607"},"PeriodicalIF":2.7000,"publicationDate":"2025-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Nursing Ethics","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/09697330251366607","RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"ETHICS","Score":null,"Total":0}
引用次数: 0
Abstract
BackgroundIndividuals with intellectual and developmental disabilities (IDD) face significant health disparities, often exacerbated by ethical and legal complexities in nursing care. Nurses are frequently challenged to balance autonomy, informed consent, patient safety, and human rights, especially in settings with unclear guidelines or insufficient training. This narrative review explores the ethical and legal considerations in nursing care for individuals with IDD, aiming to highlight challenges and propose best practices.MethodsA narrative review methodology was employed to synthesise evidence from qualitative, quantitative, mixed-methods studies, theoretical articles, and grey literature. A comprehensive search was conducted across PubMed, EBSCO, Embase, Scopus, and Web of Science, using keywords related to ethical issues, legal rights, nursing, and intellectual disability. Studies were included if they addressed the ethical or legal dimensions of nursing care for people with IDD. Data were synthesised narratively and visually mapped using conceptual mapping techniques. Quality was assessed using the SANRA scale.ResultsEighteen studies met the inclusion criteria. The findings reveal ethical tensions in obtaining informed consent, maintaining autonomy, and ensuring dignity against communication barriers and behavioural challenges. Nurses reported experiencing an emotional burden and ethical uncertainty when institutional constraints limit person-centred care. The overuse of restrictive practices and limited access to tailored healthcare were recurrent concerns. Legal challenges included complexities in guardianship, consent to treatment, and discriminatory practices. Emerging issues, such as the ethical use of artificial intelligence in care planning, were also noted.ConclusionNursing care for individuals with IDD requires ethically grounded, legally informed, and person-centred approaches. Best practices include accessible communication, interdisciplinary collaboration, tailored education, and advocacy. Nurses must receive support through training and organisational frameworks to navigate complex ethical decisions and uphold the dignity and rights of individuals with IDD. These findings have direct implications for nursing practice and policy, offering actionable guidance to improve ethical decision-making, communication, and inclusive care delivery for individuals with intellectual disabilities.
智力和发育障碍(IDD)个体面临着显著的健康差异,往往因护理中的伦理和法律复杂性而加剧。护士经常面临平衡自主权、知情同意、患者安全和人权的挑战,特别是在指导方针不明确或培训不足的环境中。这篇叙述性回顾探讨了IDD患者护理中的伦理和法律考虑,旨在突出挑战并提出最佳实践。方法采用叙事回顾法,从定性、定量、混合方法研究、理论文章和灰色文献中综合证据。在PubMed、EBSCO、Embase、Scopus和Web of Science上进行了全面的搜索,使用与伦理问题、法律权利、护理和智力残疾相关的关键词。如果研究涉及IDD患者护理的伦理或法律层面,则纳入研究。数据以叙述的方式合成,并使用概念制图技术进行视觉映射。使用SANRA量表评估质量。结果18项研究符合纳入标准。调查结果揭示了在获得知情同意、维护自主权和确保尊严免受沟通障碍和行为挑战方面的伦理紧张关系。护士报告说,当制度限制了以人为本的护理时,他们经历了情感负担和道德不确定性。过度使用限制性做法和获得量身定制的保健服务的机会有限是反复出现的问题。法律挑战包括监护的复杂性、对治疗的同意和歧视性做法。会议还注意到人工智能在护理规划中的道德使用等新出现的问题。结论IDD患者的护理需要有道德基础、法律知识和以人为本的方法。最佳做法包括无障碍沟通、跨学科合作、量身定制的教育和宣传。护士必须通过培训和组织框架获得支持,以应对复杂的道德决策,维护IDD患者的尊严和权利。这些发现对护理实践和政策具有直接意义,为改善智力残疾患者的道德决策、沟通和包容性护理提供了可操作的指导。
期刊介绍:
Nursing Ethics takes a practical approach to this complex subject and relates each topic to the working environment. The articles on ethical and legal issues are written in a comprehensible style and official documents are analysed in a user-friendly way. The international Editorial Board ensures the selection of a wide range of high quality articles of global significance.