Disease Impact and Burden of Psoriasis Vulgaris in Visible Body Areas in Japan: A Qualitative Study

Abstract

International studies describe considerable multi-faceted burdens for patients living with psoriasis vulgaris. However, there is few research on the experience in the life of patients with psoriasis vulgaris in Japan, particularly regarding psychosocial impacts when symptoms are visible parts of their body. A qualitative descriptive study using semi-structured one-on-one interviews was conducted with 23 patients. Interviews focused on the impact of psoriasis vulgaris on motivation, daily life, social interactions, life course decisions, and psychological burdens, and the transcripts were distilled into discrete qualitative concepts. Common concepts elicited from patients included changes in clothing preferences and reluctance to engage in public activities like visiting public baths and pools due to their visible skin lesions. Many patients reported encountering misconceptions about their condition, which impacted their social relationships. Notably, effective treatment led to positive life changes. The adoption of a more patient-centered treatment design may reduce the unique psychological challenges faced by individuals living with visible psoriasis vulgaris symptoms and increase their quality of life.