Tan Zhi Ai Linette, Lee Jing Yi, Liaw Khai Loon Karen, Lee Onn Kei Angel, Oh Hong Choon, Koh Lip Hoe, Ng Foong Ling, Milawaty Nurjono
{"title":"Lived experiences of family caregivers of those with advanced illnesses: A secondary qualitative data analysis.","authors":"Tan Zhi Ai Linette, Lee Jing Yi, Liaw Khai Loon Karen, Lee Onn Kei Angel, Oh Hong Choon, Koh Lip Hoe, Ng Foong Ling, Milawaty Nurjono","doi":"10.1177/02692163251359864","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Family caregivers play a crucial role in providing home palliative care for non-cancer patients with advanced illnesses. Given the complexity and heterogeneity of end-of-life caregiving experiences, there is a need to understand factors influencing caregiver outcomes for different profiles of caregivers. It is also crucial to consider the influence of cultural values on caregiving experiences, particularly in Asian settings.</p><p><strong>Aim: </strong>To explore the lived experiences of caregivers of non-cancer patients with advanced illnesses in Singapore.</p><p><strong>Design: </strong>A secondary qualitative analysis of transcripts from interviews conducted as part of a realist evaluation of a non-cancer home-based palliative care programme. Framework analysis was carried out using a combined theoretical framework to identify determinants, mediators and outcomes of caregiving. Analysis was stratified according to five caregiver profiles characterised based on the perceived burdens and benefits of caregiving.</p><p><strong>Setting/participants: </strong>Twenty interview transcripts of family caregivers of non-cancer patients with advanced illnesses were analysed.</p><p><strong>Results: </strong>Two, eight, three and seven family caregivers were profiled to have 'Intensive', 'Balanced', 'Relationship' and 'Satisfied' caregiving experiences respectively. Across all profiles, caregivers' psychological outcomes were found to be more prominent than physical outcomes. Caregivers with 'Intensive'' and 'Balanced' profiles experienced greater caregiving intensity and poorer psychological well-being, as compared to caregivers with 'Relationship' and 'Satisfied' profiles. Caregiver appraisal and quality of relationship with others were found as key mitigating factors impacting caregiving demands on well-being.</p><p><strong>Conclusions: </strong>Insights gleaned from this study can be used to develop resources for home palliative providers, tailored to the different caregiving profiles.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"2692163251359864"},"PeriodicalIF":3.9000,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476457/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Palliative Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/02692163251359864","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
Abstract
Background: Family caregivers play a crucial role in providing home palliative care for non-cancer patients with advanced illnesses. Given the complexity and heterogeneity of end-of-life caregiving experiences, there is a need to understand factors influencing caregiver outcomes for different profiles of caregivers. It is also crucial to consider the influence of cultural values on caregiving experiences, particularly in Asian settings.
Aim: To explore the lived experiences of caregivers of non-cancer patients with advanced illnesses in Singapore.
Design: A secondary qualitative analysis of transcripts from interviews conducted as part of a realist evaluation of a non-cancer home-based palliative care programme. Framework analysis was carried out using a combined theoretical framework to identify determinants, mediators and outcomes of caregiving. Analysis was stratified according to five caregiver profiles characterised based on the perceived burdens and benefits of caregiving.
Setting/participants: Twenty interview transcripts of family caregivers of non-cancer patients with advanced illnesses were analysed.
Results: Two, eight, three and seven family caregivers were profiled to have 'Intensive', 'Balanced', 'Relationship' and 'Satisfied' caregiving experiences respectively. Across all profiles, caregivers' psychological outcomes were found to be more prominent than physical outcomes. Caregivers with 'Intensive'' and 'Balanced' profiles experienced greater caregiving intensity and poorer psychological well-being, as compared to caregivers with 'Relationship' and 'Satisfied' profiles. Caregiver appraisal and quality of relationship with others were found as key mitigating factors impacting caregiving demands on well-being.
Conclusions: Insights gleaned from this study can be used to develop resources for home palliative providers, tailored to the different caregiving profiles.
期刊介绍：
Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).
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